| | Joined: May 2008 Posts: 357 Platinum Member (300+ posts) |  Platinum Member (300+ posts)
Joined: May 2008 Posts: 357 | Jim, nothing is ever simple for you, but I'm glad your most recent surgery was relatively minor. Take care.
Marlene
Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | If only this Purple People Eater body would get the normal color back. I actually feel good pain wise unless I move the wrong way. The purple color is a little darker than our OCF wrist bands. I guess it is blood under the skin. LOL Maybe i have too much blood and no more room in my vessels and arterys. Plenty of room in my head between the cobwebs tho.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Jim,
Sorry I have been MIA through your latest battle. Glad to read that you came through with flying "colors" and retained your wonderful sense of humor.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: May 2010 Posts: 224 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2010 Posts: 224 | Nissen is usually done due to hiatal hernias. I have one and they told me they wanted me to have lap band or gastric bypass, but that was before my surgery for cancer and i dropped 70 lbs and they still say they want me to do the gastric bypass and lap band, but i don't have that much more weight to lose, but they don't want me to do the nissen either, ugh. I am glad you got ur surgery and are doing well. Keep up the good fight and hope you heal up and soon, 
25/female at diagnosis
Dx;stage 3 SCC tongue 03/25/2010
Surgery 04/13/2010
Trach,ng tube, peg feeding tube
Hemiglossectomy, right side neck dissection, 40 lymph nodes removed. Free-Flap transplant to tongue.
30 rounds IMRT ended July 15,2010
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I really have no idea how much weight I lost from the Nissen but it was worth it. I can eat out of a garbage can since without that nasty sour acid comin up. I did lose the ability to regurgiate and at times I wish I could. Good luck with your decision and thanks for the message.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2008 Posts: 238 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2008 Posts: 238 | Hey there, Jim! I've been out for a good while but am so very glad to hear your surgery went well. I've got to give it to you -your attitude is FANTASTIC! I want to live to be 100 too so I totally understand. Take good care of yourself and do what they tell you to do as far as getting rest. Happy Thanksgiving!!1
Nancy T
CG/Mom: 5 1/2 years SCC upper palate,4 recurrences, surgeries, chemo & radiation. Mom went to Heaven 1/21/11.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | This morning I see my ENT to discuss what he might have learned can be done to my lower Jaw Bone. I hope it goes as good as I feel the last few days. Have a great day all and Happy Thanksgiving to all.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | My ENT told me that most of the flesh on my lower front jaw bone is gone. He is making me an appoint,emt with a Dr at UPMC in Pittsburgh for gis opinion of what can be done for me. I will go but told him I won't make any promises about saying OK until I have time to let his words sink this hardhead. I have to get the dialtion 1st. Th th th thatt's all folks. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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