| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I just checked the 2 incisions. It seems I should have looked before. They are about 5 inches wide each.Now I have eyes down there with a cigar. LOL Don't mind my humor. Gotta cover this pain distraction.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2009 Posts: 701 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 701 Likes: 1 | Wow! Already posting and I thought we'd have to wait a few days before we heard from you. So good to know everything went well and that you are home resting. Your resilience is AMAZING!!!!!
Big hugs
Anita
Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Glad you're back home, Jim - and with your same great sense of humor!  Keep us posted.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Sep 2009 Posts: 177 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2009 Posts: 177 | Great to see you Jim. I have looked for you everyday. Glad your feeling decent, and yes, try to listent to the dr for at least a week more if you can.
Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear
| | | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2009 Posts: 875 | See, I always said you were "the man." So very happy your surgery is over (at least this one), and that you're doing okay. I bet those doctors really enjoy having such a comical patient as you. Keep up the good work and write soon.
julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | It seems the Aneththesiologist ignored me when I told him to not touch my bottom jaw. He wanted to do a spinal and I told him no. This made him mad and for somereason I just checked my lower jaw because it is hurting so much. He was really mad at me for making him put me to sleep and not bother my spine. The last time they bent 2 needles trying to give me a spinal and and I made them forget that move. I called it quits then for a spinal and this time I am suffering. The jaw bone that was in pieces and jagged with it being so weak . The right side is worse right now than ever too, so he really got even with me while I was asleep. You can bet when I go for a Follow up the 6th of Dec, that I will have a talk with my Vasscular surgeon about what happened. I just talked to my son and he told me that I sure did tell him not to do anything in my mouth except the breathing tube. That guy even told me he couldn't understand too well what I was saying and of course I had to let him know he isn't easy to understand either. LOL He quit talking to me and would just talk to my son Ryan. Oh boy are pay backs a BITCH. I finally found a Dr I would like to deck.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Jim, seems like every surgery, I always end up with a battle too. Those darn anesthesiologists!!!! (pardon my spelling) I can talk to them forever and they still dont get the point. I always have to be put to sleep by a nasal intubation. A breathing tube is too big for my throat and they always hurt me when they do it that way. I ended up barely able to talk or swallow for 2 weeks when the stupid anesthesiologist did the breathing tube on one of my recent surgeries. This past one they finally listened to me when I insisted on speaking to the head of anesthesiology during my pre admission testing. Dont ya just love it when the doc turns and speaks with someone else instead of you the patient. After everything you have been thru you know what is what and arent stupid about your conditions. Very frustrating!!!! Hope you rest like you are supposed to and are feeling better very soon Be well, buddy!!!!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Christine. I think we all should take some Karate lessons and put them to sllep the fast way. LOL It sure does get ridiculous when you have been thru so much, like you have, and they think they know your body better than you do. GRRRRRRRRRRRRRRRRRRRR
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | The Vascular surgeons office called today and now I have to have blood work on the 6th of Nov. and then on the 15th take the prep kit again and have another CT Scan. One nice thing is that I can get those things done about 25 minutes from home. Then meet with the Surgeon on the 6th of Dec. to get his thoughts and the results. His office is in Cannonsburg . Perry Como and Bobby Vintons' home town.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2010 Posts: 135 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2010 Posts: 135 | Jim, so glad to see you back and posting again. I hope you are healing well and get good results!
Big Ole Hug
D
Aunt diag. 2/4/10 with SCC Stage I/II on left side of tongue. Surgery 2/19/10 part. gloss./neck diss. on left side/free flap from chest muscle. TI/II,NO,MO. Clear margins with perineural invasion. Started rads 4/8/10 - 35 treatments, finished 5/26/10.
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