I know Brian will have this covered somewhere but thought I would post it here.

http://abcnews.go.com/Health/Reprod...ral-sex-popular-spread/story?id=11916068

This TV show segment was aired quite some time ago, OCF helped assembled information, contacts, and more for it. After all that, we didn't even get a mention, and they didn't tell the story correctly. At least the story got told on the early morning TV segment, and while it has some inaccuracies, it does get oral cancer and HPV out in the world again.

While this has been out there awhile, I am always amazed at how stupid the general pubic that posts comments can be. Not just their lack of general intelligence, but the amount of misinformation and bias that they live their lives believing. It's particularly sad.

I am speechless! I don't know what is worse - the sensationalisation of the issue (and subsequent sweeping statements masquerading as truth) or the dangerous ignorance of those who commented. I actually felt sick reading the article and then the comments.

The danger of linking oral cancer to oral sex was always going to be the stigmatisation of the disease and this level of ignorance is not helpful.

I think it is good the OCF was not linked to this heap of garbage

Karen

You took the words right out of my mouth Karen!

Yeah I started reading some of those comments and began to get my dander up, was seriously considering replying from the perspective of someone who's actually been through an HPV-caused cancer... but there's no point. Idiots who post shit like that aren't interested in facts.

D2

The people that posts those comments are "professional" responders. They like to see what they have to say in print. Ignore them for they know not what they do. JMO

I attended a symposium on head and neck cancer in Johns Hopkins Medical Center on October 16. It was entitled � Update on HPV-Associated Head and Neck Cancer.�
To read about the information presented please visit my Blog:

http://dribrook.blogspot.com/

I Brook MD

Hey Doc

Since you have only posted three times (each with a link to your web site){not that's there's anything wrong with that as Seinfield used to say}, you probably did not realize that the info on HPV on your blog is very old information to OCF readers.
It is encouraging however that your fellow medical professionals are waking up.
I was amazed at some synchronicity when I read your book on line because my worst sore throat before they discovered I had Stage IV base of tongue cancer came when my wife & I were visiting Turkey for the first time. God, I loved Byzantium.
And your ancedotes about residents not cleaning trach tubes sounded like you had been in the next bed to me because I went thru all that too. I pleaded with my wife and son to bring me my dad's billy club so I could whack those smart ass residents and phantom nurses but they wouldn't.
I hope you become a regular contributor as we don't really have many "larys" posting here. I suggest you use the search function here and see how OCF has covered similar issues to those of your web site. Finally you really need to update your Ebook to refer people to OCF.
Keep the Faith
Charm

I hope that otolaryngologists and other health care providers would read my book so that they can learn how a patient feels and experience major surgery and loss their ability to speak.

Receiving empathetic and supportive care by the medical staff was extremely important to me. Surgeons can be impatient, rushing, and in a hurry to finish rounds, especially when they have surgeries scheduled. Physicians need to realize how helpless and dependant their post surgical mute laryngectomees are. They require more patience and time to communicate their thoughts, questions and concerns. Their inability to speak is a very stressful and unfamiliar reality and requires patience and support, particularly from the medical team. Patients should be encouraged and allowed to fully express their feelings and concerns. This may be a slow and tedious process as they often need to communicate by writing. The emotional well being of the patient is a very important element of the post surgical care and ultimate recovery and adaptation to a life as a laryngectomee.

I also noted that my surgeons rarely examined any part of my body except for the surgical sites. Medical protocol has always required that a patient must be seen and treated as a whole � not as a body system. This is especially important with elderly post surgical patients who may have other medical problems.

I wrote several articles in the medical literature to educate and inform physicians about these issues. To those interested they can get one of the recent one through this URL:
http://www.freewebs.com/dribrook/Cancer.my%20exper.SurgOncol.09.proofs.pdf

These issues are also discussed in my book My Voice on Chapter 16. The book can be read (and obtained) on my Blog:http://dribrook.blogspot.com/

I Brook MD