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#123157 10-16-2010 08:21 AM
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my husband says i dont have cancer even though the dr says i do (byopsy results say oral carsonoma),he keeps telling me nothing is wrong and doesnt want me to talk to anyone about this, ive held all my feelings in since january i need to talk about this im scared and confused!

lisa herrin #123159 10-16-2010 09:01 AM
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Having read both of your posts it's easy to see why you scared and confused. The only thing I can offer (aside from sympathy) is to go to your local American Cancer Society and I hope they can help you out.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
Deejer47 #123166 10-16-2010 03:07 PM
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After reading your other post (you should just continue on one of these posts only so we can follow the details of what is happening) What does your husband know about anything? Where did he get his medical degree from? Would allowing you to see the appropriate people be some kind of hardship on him? You need to be your own advocate here and do what you think is best. Doing nothing is not an option.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Brian Hill #123177 10-16-2010 06:21 PM
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Lisa, welcome to OCF. I am so glad you have found this group. You need our help!!!! First if you dont mind me asking, how old are you? It is very very important that you get treatment for this. This is life or death. Please go to a cancer center immediately. I have added a link to the cancer centers at the bottom of this post.

When I hear of spouses acting like yours it makes me very upset. Your husband is so lucky to have you. Sometimes unfortunately spouses do not fully realize how lucky they are to have a person who loves them. He should also join OCF if for nothing else to understand how important it is to get treatment for this.

I wish you all the best. Please keep posting so we are able to help guide you along.



http://oralcancerfoundation.org/resources/index.htm#centers


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
ChristineB #123185 10-16-2010 07:42 PM
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Hi Lisa
It appears your husband is confused about the definition of carcinoma which is a common misunderstanding. "Carcinoma" is another word for cancer but means that it is likely early stage -not pre-cancerous as some people think.

It is also possible that you heard one thing and your husband heard something completely different so at the very least you need to go back to the doctor for clarification. Immediately. Treatment for oral cancer that has not spread is a whole lot easier and more successful than one that has.



Karen
Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes
Dx March 2010 51yrs. Unresectable. HPV+ve
Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31
Chemoradiation (IMRTx35 + weekly cisplatin)
Finish Aug 27
Return to work 2 years on
3 years out Aug 27 2013 NED smile
Still underweight
klo #123229 10-17-2010 11:01 PM
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Lisa, where are you in Arizona? I'm in Mesa. Let me know if you are near me. Maybe we can get together and talk.


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
Bloop19 #123308 10-19-2010 01:05 PM
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Lisa, please follow the great advice here. Find a doctor to talk to about your situation. Keep comming back here we will support you.


Wendy
46yrs@ DX 9/16/09 T1N0 SCC of leftlat tongue, poorly differentiated.Partial glosectomy 10/01/09 & 10/16/09 & 11/10/09 60-70% tongue removed, Radical fff, 38 nodes-clear, no rads/chemo. 3 petscans-clear

Bloop19 #123362 10-20-2010 04:21 PM
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Bloop,
I live in chino valley,az, but my uncle is in east phoenix and i come down as often as i can to see him i would enjoy getting together to talk.
Lisa

lisa herrin #123378 10-21-2010 12:19 AM
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Oh wow, you are way up north!! E-mail me at [email protected] or PM me next time you will be in Phoenix. I'd enjoy getting together too. I haven't met anyone in person from this forum even though I feel they're the only ones who understand me. My family seems to think since I'm done with radiation and chemo I should just be back to my old self now.

Barbara


BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
lisa herrin #123440 10-22-2010 11:21 AM
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bloop19, can i ask did you get all your teeth pulled? My boyfriend did and they told him at first he should be fine for dentures in 6 mo than the last time he went I guess the radiologist put a kabash on that saying he may never be able to get them. I wasn't there so I don't know exactly what he said. Maybe Ron just heard it wrong. Have you gotten dentures?


CG to Ron
Out of Pain 4/3/13
4/12-lung and under chin growth no treatment
1/13/12 lung biopsy
6/11 recur 6/30 resection #2 Clear margins
Clear 12/10
Surg 5/13/10 neck dis/nodes part gloss/flap R thigh all teeth out
RAD 30 8/10
DX 4/2/10 "Oral Cavity" T3NOMO
12/28/07 Non Hodg Lymph remission 7/08
passed away 4.3.15, RIP Ron, you are greatly missed
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