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| Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Hi Ed - Great advice you've gotten above! For the sleep problems, my son tried different things - and then settled on sleeping in the recliner and that seemed to work pretty well until he got over the worst of the treatment effects. How good it is that you have your son and daughter to help with your recovery. Things do get better!
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Aug 2010 Posts: 4 Member | OP Member Joined: Aug 2010 Posts: 4 | malo5, sounds like you had something very similar to what I'm going through. Glad to hear you made it through well. My weight is lower than I'd like, and sleep is difficult, but my neck has responded well to the radiation. I'm done with chemo and have a week of rads left. Then I'll be waiting a month before the cat. Hopefully I'll have good news to report. All the best to everyone, thanks for the support.
oropharynx w/ neck metastasis, stage 3 58 yrs old, male started treatment 8/9/10, 3 chemo and 38 rad scheduled | | | | Joined: Jan 2010 Posts: 5 Member | Member Joined: Jan 2010 Posts: 5 | I slept semi-reclined with a humidifier pointed near me for about 12 weeks. It might help...
SCC BOT HPV+ diagnosed via neck bump and directed biopsy's January 2010. PEG in 2/2010. Finished 35 radiation treatments and 3 doses Cisplatin March 29, 2010. PEG out 6/2010.
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | During my radiation treatment I had to sleep sitting up because if I lied down I could not breath at all. My RO then made me take a week off, because the swelling in my throat was so bad It could not even lie down for treatment without struggling to breathe. Yes, sleeping was an issue for me and has been since. Now it is not due to pain, but to dry mouth. Anyway keep fighting. Just remember about 4 weeks after treatments end you will start to feel better. Pray that the treatments worked for you.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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