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ChristineB #119851 07-31-2010 11:13 PM
Joined: Feb 2009
Posts: 88
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Feb 2009
Posts: 88
I agree that you need to find an ENT with experience with cancer patients. I have an actual head and neck surgeon that specializes in cancer and oral stuff. I have also had days where I struggle to swallow but it usually does not last more than a day. Can be scary but keep a positive attitude about it all. There are a lot of people on here that can help too. I have to say that I have not used this sight as much as I probably should have for support but I have a pretty good attitude about it all most of the time.

Brandy


CG to daughter Brandy age 31 initial dx 10/06
SCC T4N0M0 with bone invasion upper maxillary
Surgery 10/06
CT's clear for 2 years

2nd recurrence - Laser surgery 1/09 dx
Tumor board - No surgery to invasive for QOL
35 IMRT 3/30/09 Completed 5/15/09
8 tx Erbitux 3/24/09 Completed 5/6/09
Bonniey #120007 08-04-2010 11:28 PM
Joined: Dec 2009
Posts: 63
jonp Offline OP
"OCF Down Under"
Supporting Member (50+ posts)
OP Offline
"OCF Down Under"
Supporting Member (50+ posts)

Joined: Dec 2009
Posts: 63
Just a quickie

My advice (from my one experience) is go to the head and neck/cancer specialist over the ENT specialist...

My ENT biopsied after a 3 month wait, didnt find anything and it was another 3 months before he talked about a second biopsy...I dont hold it against him, maybe it was hiding, or hard to get to, but the head and neck guys found it straight away and nailed it when they got it out too....
cheers
jon


stage 2 scc in left oral tongue. 32 at dx
removed 21/12/09 plus left neck dissection and upper arm flap.
clear pathology 24/12/09
non-smoker
active footballer/surfer
social drinker
lives stress-free!
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