#11973 08-25-2007 08:08 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | OP  "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | I wonder if it might be an idea for Brian or Gary to add an extra board to this forum titled Recurrance.This seems to be happening such a lot at the momet and it is difficult to know which board to post in.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#11974 08-25-2007 11:21 PM | Joined: May 2007 Posts: 27 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2007 Posts: 27 | I think that may be a great idea. | | |
#11975 08-26-2007 08:32 AM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Leave it to Cookey to continuously submit ideas to update and improve the Forum! Kudos, Cookey!
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#11976 08-27-2007 06:30 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Maybe not such a great idea then  i just thought it may make life easier for people who dont quite know where to put the subject.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#11977 08-28-2007 07:46 AM | Joined: May 2003 Posts: 102 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2003 Posts: 102 | I think it's a good idea. I wish I could have known what to tell my Uncle to expect when my Aunt chose to do nothing after her recurrence diagnosis. When Aunt Ro was really doing poorly and was obviously getting sicker with each passing week, I didn't post at all because I didn't want to disturb the positive attitude of those who were in the fight. I think it would be a good idea though. It would help to inform caregivers and families as to what to expect. It would also gived loved ones somewhere to talk about the emotional stress of watching someone fade away. For me, I ended up not talking about it with anyone and when Aunt Ro finally passed, I was shell shocked, almost speechless, cried and was thoroughly sick for three days straight.
The families could use the support too.
Lisa
Niece to Aunt Ro- Dx: 4/03. SCC Stg 4 BOT with mets to fl of mth & crvcl lymph node. AdenoC 1 sal gland. Two add. reconstrc. surgeries for adhesions. Recurrence 7/06- Sub-Mand AdenoC. Mets to both lungs. Lost her battle 5/4/07.
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#11978 08-28-2007 09:51 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | OP "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | you have hit the nail right on the head lisa.Its not wanting to alter the status quo.We had no hope and no positive news to give,but i still needed to share my feelings and fears and not feel that our defeat and despair would affect others who were just starting their fight or facing the possibility of bad news .
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#11979 08-28-2007 11:19 AM | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | I agree too,
it IS a good idea. There is still a lot of info that can be shared, but for which the target audience is not those who are just at the beginning of the treatment.
Markus
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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#11980 08-29-2007 01:47 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Yes, I think this is a great idea. When I was undergoing and just out of treatment it was really hard to read about people suffering recurences, but I do think people dealing with that need a place to share and support each other.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#11981 08-29-2007 12:34 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I'll deal with rewriting the structure of the board over the weekend so you can have what you desire.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#11982 08-29-2007 01:52 PM | Joined: Nov 2006 Posts: 166 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2006 Posts: 166 | Brian, I think it would be a great idea. Your the man.
Bill B. Dx 10-16-06 Stage 4 T2N2bM0 SCC Left Tonsil,3 nodes. 1st tx 11-28-06, last tx 1-8-07. 3x Cisplatlin, 5fu pump, and Doxetaxel. Modified neck dissection,20 Nodes removed, all clear 02-21-07. HPV+,33 IMRT start 3-22-07 70GY,Completed 05-04-07 | | |
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