| | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Sep 2009 Posts: 229 | Welcome to OCF Randy! Looks like you have a positive outlook!
Patty
08-10-09 Partial Glossectomy w/suprahyoid neck dissection
SCC T1NOMX Stage I | 46 years old
| | | | | Joined: Jul 2010 Posts: 27 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jul 2010 Posts: 27 | Kelly, I'm in Detroit, going to Michigan for treatment. It's about 40 miles. I'm thinking we'll end up spending three weeks at a hotel or med assist residence over there near the end of treatment. Ann Arbor actually is closer to my wife's job than our apartment downtown. Good news today: It is HPV-positive. I never imagined being happy about having a sexually transmitted disease. But that's more reason for hope and motivation. Just finished some of the amazingly good homemade peach ice cream my wife made. Need tonsillectomy to finish healing so I can get some red-meat protein in me. I'm going to have dental care and fake spit questions. Where do I post those?
Randy, Stage 3 tonsil SCC, node involvement, HPV-positive. 7 sessions of Taxol-Carboplatin, 35 rads finished 9/8/10. Post-TX PET and CT 12/1 showed "no metabolic evidence of residual or recurrent disease." Yay!
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Randy, I love your attitude. With a positive frame of mind like that you're going to get through it all beautifully. No question, it's a tough road. But you sound like a strong guy with a great support system.
Welcome to the club, unfortunately... but you couldn't be in a better place than here at OCF. Keep us posted and ask any questions that come up, no matter how silly or trivial they seem!
David 2
Oh and I second my namesake DavidCPA: eat everything in sight, eat till you're full to bursting!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Randy,
My RO is a UM guy. It is the best place in the state to get treated and one of the best in the country. You are in good hands.
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Randy,
What an amzing outlook you have! Welcome to the forum. Sorry you had to join us, but glad you did. We are all here for each other and an amazing group of people to lean on in tough, scary times. Keep us posted on how things are going.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi Randy,
I would also like to welcome you to the OCF forum. You have already found out how supportive the people here are.
All the very best for your upcoming treatments.
It comes through load and clear that you have a great attitude.
On the days when you don�t feel like being that "best cancer patient that you can be" feel free to come here and vent.
Gabriele
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Randy.. I do have to say you just put a smile on my face. I wish I was that lucky and give you congrats. I just have to have th e
unique type. I guess she must have been different. LOL
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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