| | Joined: May 2010 Posts: 48 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: May 2010 Posts: 48 | Hey Folks Just wanted to say hi! yeah I know it's been a while; plus I'll be honest I also spend some time on the other site for the American Cancer Society for Head and Neck Cancer. Also, I tend to stay off the site going through the treatment because i always managed to find the hidden posts that talked about recurrence and negative stuff. I want nothing but positive right now in my life.
Anyway, Monday will be dose 33/33 for radiation. The right side of my neck is pretty raw; I would say it's pretty close to 2 degree burn. Left side is 1 degree. They supposedly did 56 gry to back of throat, 67 gray to right side of neck, and 56 gry to left side of neck. Wed will be my 3rd and last dose of Cisplatin (3/3). I tend to over analyze things so I'm not sure about side effects yet. I feel like everytime I sit down for chem I'm playing a game of Russian Roulette. So far I think I have noticed some intermittent tinitus to the right ear. Also, sometimes I think I have some numbness to my toes. But like I said I could be over analyzing. I did have PEG tube put in 3 weeks ago. I'm so glad i did. So far lost about 28 lbs. Seem to be managing now. I just can't wait for the healing to begin. I've lost most of my voice and have difficulty swallowing between the pain and the thick mucus causing me to gag! Well I just wanted to post status. It's all in GODS hands now!! God Bless!
Charles
Charles
HPV +16 Right Tonsil SCC with 1 Right lymph node. Tonsillectomy and neck resection.
Got 33 radiation doses via tomo machine (58 gry to back of throat, 65 gry to right neck, and 56 gry to left neck) with 2 cisplatin and one carboplatin due to possible hearing loss.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Congrats on finishing your treatments. Very soon you will start to feel better. Wishing you a speedy recovery 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Congratulations!!! Let the healing begin!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Charles, congrats. By the time I'm writing this you'll have been finished with rads. Whew.
My suggestion: take the summer off!
You'll be getting better before you know it.
David (2)
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: May 2010 Posts: 48 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2010 Posts: 48 | Thanks Everyone,Yes I finished last dose of chemo today. I'm so excited I realize there is still a long road ahead of me. But if i made it through this alone i can do anything. Now I just have to make it through this last chemo round wed. I hope all is well, would like thank everyone again for all of you support. I wish I could give everyone one BIG group hug! Just hope this treatment will be worth it in the END! God Bless!
Charles
Charles
HPV +16 Right Tonsil SCC with 1 Right lymph node. Tonsillectomy and neck resection.
Got 33 radiation doses via tomo machine (58 gry to back of throat, 65 gry to right neck, and 56 gry to left neck) with 2 cisplatin and one carboplatin due to possible hearing loss.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Charles, glad to hear you are finished with radiation and just have one more chemo to go. Its a rough road. If you did this al by yourself then you are a very very strong person. I had very minimal assistance my first time thru it and I struggled so much. Now you can rest and in a short time (usually about 2 or 3 weeks) you will start to feel like yourself again. Right now you probably feel pretty crappy, weak and a sore mouth. You lived thru it and lived to tell about it The treatment is definitely worth it!!!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: May 2010 Posts: 48 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: May 2010 Posts: 48 | Thanks guys! Well treatment has been officially over since June 28th. The first week was really rough got real weak and real depressed. Luckily this following weekend I feel better. I'm still not swallowing normal I have to consciously make an effort to swallow. Probably lost about 35 lbs so far I hope I maintain at this point. Don't really have a lot of pain but still taking all food via peg. My goal is to try and get down a watered down ensure today. I pray that everyone else is doing well. I also pray that all this was worth it!!
Charles
Charles
HPV +16 Right Tonsil SCC with 1 Right lymph node. Tonsillectomy and neck resection.
Got 33 radiation doses via tomo machine (58 gry to back of throat, 65 gry to right neck, and 56 gry to left neck) with 2 cisplatin and one carboplatin due to possible hearing loss.
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