Well I haven't been on in a bit I was in the hospital ..minor stroke and possible sezure. UGGHHH enough already !!! However on my MRI they found an infection in my jaw so I need to go to the ENT and see if any correlation to the cancer as I have had this lump that nothing picked up. I also have a 2mm tonsilar ectopica when looked up is more reffered to as Chiari type I malformation . Not so good ..But Hey what is one more thing rigHT !! exceot I wanna stop going to drs as I never get any good news.

I am still doing the fair so please make sure to send any photos or anything you wanna share. I am ev en trying to get somne radiation mask,,I want people to realize what this is . I am also trying to come up with money raising Ideas to send to the OCF and any catchy slogan as I may have shirts made up. so send me all Ideas PLease !!!

Shar

Hey Shar,
Sorry to hear that you are going through so much. I can't imagine what you must be feeling.
I'm not familiar with what you wrote about, will look it up to see.
how are you holding up?
I can't remember anything--when is the fair?

The fair is Tues the 28th until Mon sept 3rd ,,but I gotta do it ya know ..it means so much to me and to others and it can help ..even through all of this it is sooo sooo important. I Hate this all so much it sux ,,I dont wanna whine but I am WAY to young to be going through all of this and I feel like I am doing it alone exceot with the help and love of you guys xoxoxox


They tell me I am a strong women and I used to beilieve it ..but part of me belives I am losing strength and parts of me daily ...I hate going to Drs cus nothing good ever comes....now strokes and infection in the jaw and this other thing which effects the brain ..HELLO I am only 35 with 5 kids to raise,,,And I will hang on for them....but how much can one endure and they don;t make it easy , when I called home to say I had been admitted my oldest was PISSSED as I had ruined her plans didnt even ask if I was ok and when I called hubby he questioned which floor ( meaning Pshychiatric) as we had talked about me needing a break and help figuring things out


and learning how to take it one step at a time and one thing at a time ..I dont get a break here even when I am sick. When I came home from hospital last night ..I slept ..today Joe worked so BOys woke me up at 730am fighting over pizza and my day went on from there, I got up cleaned and took a shower took my meds ( which I take on and off ..,.not good I know ) and laid back down as they make me really tired ,,Of course that became a problem too, so I dunno how I do it ,,but I will get through it somehow

sane I can't promise ..Alive I hope.. This fair is what is keeping me going right now it is important to me and gives me hope ..after this I dunno atleast kids will be back in school and I only deal with joe in the evenings..Maybe I need to go back to work although I dont know how when I am at drs 3-4 days a week.

Wow, Sharlee, 5 kids would wear me out on a good day. I don't know how you do it.

I read through your recent postings...I have to look up some of the medical terms. Why do they think you had a stroke?

Have you ever had seizures before? And, the Chiari Type 1 malformation...that's one I'll have to look up.

You seem like you have a great attitude and I think it's impressive that you are moving forward with the fair. I'll e-mail you some stuff to see if it can help.

Take good care,