| | Joined: May 2010 Posts: 37 "OCF Canuck" Contributing Member (25+ posts) | OP  "OCF Canuck" Contributing Member (25+ posts)
Joined: May 2010 Posts: 37 |
Hello all! I am a new member & am 8 week's post treatment.
Besides extreme fatigue & dry mouth plus the ususal eating
issues I am not doing to bad. I have been a member for a few
day's & decided to finally jump in. However, this site seem's
very friendly & most of all helpfull. This is all new to me
& very frightening. I hope you can all bare with me as I am
computer challenged.
Roz
Stage IV Pharyngeal cancer. Treatment 38 rads 3 cisplatin
Stage 1V scc of toncil 12/1/09
Peg in 01/18/10
35 rads 3 cisplatin
tx ended 03/02/10
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Glad you decided to break in. Ask any question and share what you want.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Sep 2009 Posts: 63 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2009 Posts: 63 | Welcome Roz
I know how you feel; it still feels very new to me and I'm still not sure how to manuever thru some of the forums. You will find everyone quite helpful; they will answer the most serious and the silliest questions you might have so don't be afraid to ask. Good luck!
Pat
Pat - 62 yr. old -DX 8/29/09 SCC stage III floor of mouth
Lower teeth& bone removed
Port& Peg
Cisplatin x3; Rad 35 - ended 12/21/09
Fox Chase 2nd opinion-mandibulectomy; tracheotomy; left neck dissection; jaw reconstruction 5/13/10; flap failed;new flap 7/13/10; lipo January 2011
| | | | | Joined: Sep 2009 Posts: 148 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Sep 2009 Posts: 148 Likes: 1 | Hi Roz, Sorry you share in this oral cancer. The worst is behind you, so enjoy getting stronger with each passing day.
BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"
*** Admin update --- Dianne has passed away on August 25, 2015 ***
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Welcome to our home Rz. We are all friendly here and even mouthy at times. LOL Some like me are so full of it that it just runs out like water over a dam.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2007 Posts: 1,301 "OCF Down Under" Patient Advocate (1000+ posts) | | "OCF Down Under" Patient Advocate (1000+ posts)
Joined: Aug 2007 Posts: 1,301 | Hi and welcome Roz,
You will find this site the best for information and encouragement from the OCF family here.
Don�t worry about being computer perfect, just jump in any time you have questions or fears.
There is no such thing as a silly question or concern so ask away any time.
History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.
1/31/16 passed away peacefully surrounded by family
| | | | | Joined: May 2010 Posts: 37 "OCF Canuck" Contributing Member (25+ posts) | | OP "OCF Canuck" Contributing Member (25+ posts)
Joined: May 2010 Posts: 37 |
Thank you all! I most definitly will be picking your brain's
for information. I really do appreciate the warm wellcome.
Stage 1V scc of toncil 12/1/09
Peg in 01/18/10
35 rads 3 cisplatin
tx ended 03/02/10
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Roz, welcome to "the family". Only a comment on being computer challenged.... when you type in the post box, you do not have to hit any returns unless you want to start a new paragraph. It is all dynamic, and your posting will shrink or expand when viewed here as the viewers screen dictates.
Last edited by Brian Hill; 05-11-2010 09:28 PM.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Roz. You will find lots of info not just here on the forum but also on the main pages. Not all of us are computer geniuses  (especially me) I have updated the FB list and added you. The OCF website is where to go for medical info about oral cancer. Some members are also on Facebook, but thats a friend site, not for medical things. Just wanted to make sure you understood the differences. I wouldnt want to see you asking a medical question on FB and no one answering you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: May 2010 Posts: 37 "OCF Canuck" Contributing Member (25+ posts) | | OP "OCF Canuck" Contributing Member (25+ posts)
Joined: May 2010 Posts: 37 | Thank you kindly Christine! I really appreciate your help!
Stage 1V scc of toncil 12/1/09
Peg in 01/18/10
35 rads 3 cisplatin
tx ended 03/02/10
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