| Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Nov 2009 Posts: 212 | hello friends, got a question for you. I am 7 months post tx and generally doing well. Just a few "little" mproblems. So I posted a couple of months ago that my jaw does not open very wide. So I take little bites of food. Actually I eat like a rat, knawing at most things...Rat Man. My voice is always pretty hoarse, sometimes very hoarse. I sound frogy all the time...a ha, Frog Man! so I am either a frogy rat or a ratty frog.
How are many of you other survivors doing. I had 40 days Rad and Chemo, no surgery. Will I be froggy forever? Is your voice like a meadow lark. I also can not shout.
Kidding aside, it does effect my work sometimes and it can get so bad I can not speak to a customer
Thanks!! Steve
Last edited by tristeve; 04-12-2010 06:56 AM.
70 male, athlete...again SSC of undetermined orgin , early july 09 40 tx radiation, 8 chemo cisplatin and ebuterx finished TX in mid Sept 09 Clear at the 6 year mark! Back to swimming, biking and running! just a tad slower never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | Joined: Sep 2009 Posts: 17 Likes: 3 Member | Member Joined: Sep 2009 Posts: 17 Likes: 3 | One idea for the frog is to keep your mouth moist. Plenty of water or sugar free gum is great if your teetn are OK. Be carefull about the weight I lost thirty pounds keep it off for a year now that my tate buds are back I have found 40 pounds my taste buds are in overdrive.
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I have a froggy voice and I am a teacher. most of my students do not have a problem with it, but some hav thought I was yelling. Sometimes I do get too loud and can not hear myself getting loud. Interested in responses. Sometimes I do not even have much of a voice. My students like that.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Mar 2009 Posts: 147 | Almost one year post treatment and my clients have stopped commenting that my voice is raspy. So it must be getting back to normal. I still can not yell (at sporting events etc) or my throat gets sore. I was also concerned when my voice would "give out" after talking for a few minutes even with alot of hydration, but it is holding up well now.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10 | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,406 | Steve, I was pretty raspy there for a long while, including a couple of months when all I could do was whisper. Now 10 months post RT my voice still sounds a bit strange to me, although people tell me I sound relatively normal. My guess is you voice will also come back. Just hang in there!
D2
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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