| | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | after 3 weeks in the hospital I have made back to my apartment. The flip set in really good. Just had a few set backs, it took about 2 weeks before the wounds in mouth to start to heal. Then one day it turned pink and started to heal. The Dr. said it would take around 1 to 2 month for the wound to heal. slowness of the healing is due to the radiation treatment 3 years ago. I still have good days and bad days. Today I feel supper tired and all I want to do is sleep.
Right now I have a feeding tube in and cannot wait until I can eat again. But have to wait for the trach area to heal up. They say it should be closed up in about 1 to 2 weeks. Things are healing, just really slow.
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so glad you are home recovering. Thanks for posting your status. I sent an email to your parents but didnt get a response. Sounds to me like you are very fortunate in recovering so quickly. Im sure to you it doesnt seem like you are healing quickly, but from someone who has been there....you are doing excellent!!!! Rest up and make sure you get the formula feeding in a routine. Do you have a pump for it? Its very important to get the right amount of formula daily or you will feel lousy and healing will go slowly. Just ask if you have any questions about the feeding tube stuff. Ive had one for over 2 years. Congrats on a successful surgery. Hope you feel better soon 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2006 Posts: 1,357 Likes: 5 "OCF Canuck" Patient Advocate (1000+ posts) | | "OCF Canuck" Patient Advocate (1000+ posts)
Joined: Sep 2006 Posts: 1,357 Likes: 5 | So happy to hear from you and hear that you are recovering well, albeit slowly. Sounds like things went very well. Dont expect too much of yourself - you have been through a huge surgery and hospitalization. Look forward to hearing more on how you are doing - if you have questions about recovery - be sure to ask - someone on here will have been thru it!
Donna
Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
| | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 | Great to hear that your surgery is over and done with. There is no place like home!!
It seems like nearly everyone who has had to have surgery that involves their jaw bone has had to endure some sort of damned setback.
Glad it is behind you now and you are able to get onto the healing.
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: Sep 2007 Posts: 60 Likes: 2 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Sep 2007 Posts: 60 Likes: 2 | thank you everyone
It is good be be home and still doing good. I know it will take time to heal. I just wish the doctors would not say oh you will be healed up in 4 to 6 weeks. Now they are saying 2 to 3 months. Now I just take each day as it comes. My goal is to get the feeding out in a month.
Round 1 5/2007 - 35 Rad treatments and 6 chemo of cisplatin
TPN feeding for 5 months during treatment and after.
Tumor was on the right side of the tongue.
Round 2. Tumor on the lower back right jaw area. Surgery on 3/12/2010 to remove the tumor, rebuild the jaw and some work on the back tongue.
| | |
| Forums23 Topics18,168 Posts196,927 Members13,104 | | Most Online458
Jan 16th, 2020 | | |
|
