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#114250 03-18-2010 02:59 PM
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I notice that many of you include non-drinker I realize there is or maybe a connection between Alcohol and Oral Cancer. I have always been a casual drinker and that is now maybe 2-3 drinks a month before my DX. My question is does having Oral Cancer mean I should NEVER have another glass of wine or cold beer. I know it is my choice but I don't feel informed about this issue. Please don't blast me for asking:)


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
Seda Bug #114252 03-18-2010 04:18 PM
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No one will blast you - it is an question I have asked myself. I was a social animal before diagnosis, and yes that meant going to the bar, going to dances, having friends over to play cards - all involved a drink or two or three. I LOOOOVE cold beer. Having said all that, I was certainly never an alcoholic - no where close. BUT, Both mother and her father were confirmed alcoholics. My mom died at the age of 44 from chirossis of the liver.

When I was told that alcohol could be a contributing factor to oral cancer (I had also smoked for years), I quit drinking pretty much completely for the first 4 years. The cancer came back anyway in 2 1/2 to 3 years.

Since my 2nd surgery I have kept my cold beers to a minimum. Usually I dont drink if I am in my home Province - with the exception of one beer every month or so. During our last trip to Mexico (all inclusive), I just didn't worry about it - I drank what I wanted.

I have discussed this subject many times with my doctors. They say that none of us live in a bubble and it is impossible to say EXACTLY what caused my cancer. They urge caution - they don't want me having 2/3 beers a day - but also say I should used moderation and enjoy my life. I get the impression from them that they think it was the smoking and not drinking that caused my cancer.

When you talk about causes, I often wonder about the genetic link I might have to this cancer. Cancer of the Tongue - years ago - was known as the Alcoholics Cancer - came from a combination of smoking and lots of drinking - normally attributed to 70 year old skid row men. I do feel that the old school picture of a tongue cancer patient did slow down me being properly diagnosed, but we have all learned since then.

Good luck with your decision.

Donna

Last edited by Pandora99; 03-18-2010 04:23 PM. Reason: hoping to make sense!

Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)
Pandora99 #114253 03-18-2010 04:45 PM
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My understanding is that a combination of smoking and heavy drinking is a known factor in OC. Of course, there are people that have done both for years and never get it and as we see here folks that have done neither and get it. But it is a known risk factor.

The other thing with drinking to take into consideration(and now I might get blasted) is what you are mixing it with. Many medications are not meant to be taken with alcohol (and that includes psychotropic medications, sleep meds and pain meds). It doesn't necessarily mean you can't drink ,it just means it's worth looking into.

I think it is a very reasonable question and worth a conversation with your MD if you have concerns about it.


CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
SusanW #114255 03-18-2010 05:14 PM
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My grandfather passed away at the age of 48 from oral cancer. He was a very heavy alcohol drinker and tobacco smoker. A dangerous combination.

I was a weekend glass of wine with dinner drinker and only smoked cigarettes for a short time about 30 years ago.

If and when I am able to drink any liquid besides milkshakes and water that doesn't burn my mouth, I will be opting for the non alcoholic ones. That is my decision and isn't based on any advice from a MD.

Like they say, as long as it is in moderation it should be okay.

Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Seda Bug #114261 03-18-2010 07:13 PM
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Hi Seda Bug,

This is a subject to discuss with your medical team.

You can also find information about alcohol and oral cancer on various websites.

This information should help you decide what course you want to take regarding alcohol consumption.

Best wishes,

Chris


SCC left tonsil, 2 lymph nodes, modified radical neck dissection, IMRT (both sides) completed 10/25/06, Erbitux and Cisplatin weekly, Ethyol daily
Seda Bug #114266 03-18-2010 09:40 PM
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Hi, Seda Bug -

My drinking pattern is similar to yours - 2-4 drinks a month. I asked my ENT the same question. Knowing my alcohol consumption pattern, he said he didn't think it was a risk factor in my OC.

I'm not taking his comment as giving me license to drink. I think he was expressing the reality of this gray area: there is a causal relationship between alcohol & OC, but is there proof that having 2-4 drinks a month can cause OC? He couldn't tell me.

If I drank regularly, I might be concerned, but drinking is an occasional social activity for me. Am I taking an unnecessary risk? I don't think so. Still, this is my choice and I wouldn't recommend it to anyone else. You have to be comfortable with whatever choice you make.

Marlene

[quote=Seda Bug]I notice that many of you include non-drinker I realize there is or maybe a connection between Alcohol and Oral Cancer. I have always been a casual drinker and that is now maybe 2-3 drinks a month before my DX. My question is does having Oral Cancer mean I should NEVER have another glass of wine or cold beer. I know it is my choice but I don't feel informed about this issue. Please don't blast me for asking:)[/quote]


Marginal mandibulectomy 6/17/08 resulted in DX of Stage I SCC - gingiva (3 mm) right mandible, buccal side. Clear margins. Occasional social drinker. Smoked last cigarette in 1979. Clear pet: 12/08; 7/20/09. Yay!
Marlene41 #114270 03-18-2010 11:20 PM
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I have a glass of wine (with a water back since it burns a little) and a beer every now and again. I wasn't a huge drinker ever. Beer and wine on weekends and I had a phase with shots sometimes but not in over 10 years. I quit social smoking in 2001. In college I def drank on weekends and smoked socially. I lived in New Orleans. I don't know if the brief period I did smoke caused this. My Drs. dont' think so. I had a small denture on a back molar that I had while i was waiting to be able to afford implants. It did rub against my tongue and it was on the side of the cancer. Who knows.. I'll never really know.

I think the occassional adult beverage is probably OK. I haven't really tried hard alchohol as I think it might really burn. Certain toothpastes really burn me and some spices are just unbareable. I avoid all of these things... and to be ohonest I've kind of lost my taste for alchohol.

With having cancer and going through all the treatments I felt liek crap for about 2 years so being hungover has zip appeal to me.


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
misskate #114276 03-19-2010 06:29 AM
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Seda

You certainly sound like a "non-drinker" to me with less than one drink a week. Don't worry about being "blasted" for such an innocent query - it's only posters like myself who unabashedly encourage drinking despite Oral Cancer that elicit the puritanical admonishments - but then I just read them while putting some wine or beer down my G tube and laugh out loud wink As I posted in an earlier thread:
[quote]My personal reason for drinking is exquisitely simple, I have always had a Dionysian personality instead of Apollonian. Or as the french say:"Laissez Les Bons Temps Rouler"[/quote]

On the medical front, each and every one of my doctors at the CCC felt that one beer or one glass of wine a day was an insignificant medical risk, Their only caveat was not to drink alcohol if it "burned".

Do I think Alcohol was the cause of my cancer? Heck no. HPV+ and my immune system just conspired to betray me. My father was a real drinker plus had smoked when younger yet when had zero oral cancer his entire life. I bugged the heck out of my doctors the first time around about guilt over my drinking habits until they pointed out that either they drank the same amount or their friends in medical school drank even more yet not one of them or their friends had oral cancer. Sadly, people like you prove that just not drinking does not guarantee protection from this terrible cancer.
Of course, I was raised Catholic back when the Irish priests always pointed out the special significance of Jesus' first miracle being turning water into wine. No grape juice at our Communions.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #114279 03-19-2010 08:04 AM
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Hi Seda Bug,

For what it's worth my husband Ron is a 5 year cancer survivor and he has a couple of Margaritas on Friday and Saturday nights. It's a social thing for him and he enjoys it. As they all have said, I think moderation is the key.

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
Shelley K #114280 03-19-2010 08:26 AM
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Thanks everyone. I really don't feel that my drinking was the cause but rather just fate. I understand about not drinking becasue of the taste. I haven't had enough to drink to have a hangover in so long I can't even remember it. I am just curious about things. I can count on you guys to have a balance of answers to the questions. The only reason I was afraid I would get blasted was because if the connection was like smoking then the answer is a no brainer.


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
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