| | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Mary, I have gone nonstop since Aug 2007 and when I sat down to rest my eyes would close for about a half hour and then I would get back at keeping busy. 3 1/2 yeras later, if I am sitting about 3 PM, I still take a nap, not by choice, but from the treatments. Don't fight it like I tried to but take a nap when you need it. Good luck with everything. Yes, I exercise at least 2 times a day , doing 200 repitions per day . It seems to keep my mental attitude where it should be and makes my body feel better.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Mar 2010 Posts: 1 Member | | Member
Joined: Mar 2010 Posts: 1 | I'm a stage 4 survivor of tongue base SCC. Had CCRT one year ago and still cannot swallow - esophagus has complete stricture (it's blocked). Curious if anyone else has had this problem - docs say it's too dangerous to open the stricture and that my only hope is for them to build me a new path to the esophagus below the stricture so I can eat and drink. I don't want to do this. Any suggestions? JustJoe | | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | just joe,
welcome to the forum. so sorry for your complications.
try and start your own thread, as it could get lost here. just go to introduce yourself and click on start a new topic.
i cant help you personally with your problem but others should be able to give you some advice.
hang in there.
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Joe I have many troubles swallowibg but force it. I also have Barretts Esophagus that doesn't help. Get your throat dialated. This I have done.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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