You may also want to consider the Therabite device, which is also used to treat trismus. I have had great luck with the Therabite but have no personal experience with the Dynasplit.
Charm

I'll be sending positive thoughts your way as you fight this battle.

Welcome aboard. So sorry. As far as your concern to being the Puke queen again..........It was my experience the Cisplatin did not cause too mcuh nausea - nothing that the Emend could not control. You have already been through so much. My grandson had a bone marrow transplant and I saw first had how excrutiating GVHD could be. I am so sorry you have to deal with cancer again. Good luck.

Mary you will be fine, Just get the 1st day thru like you said then the rest will be the same. Just make the best of what has to be done. Drink and eat as much as you can for now while it is still easy.

Thanks to everyone who helped me not be so scared. There are lots of knowledgeable veterans out here with experience & wisdom to count on.

I just got out of the hospital. Radiation Mon. noon then chemo and LOTS of fluids overnight, radiation today. Back tomorrow for just radiation, then Thursday for IV fluids & radiation, etc. Busy, busy schedule.

I am not nauseous, just a little queasy right now. They said that I should make sure I take the zofran, dexamethasone, and other meds to make sure I don't get too much problems, and compazine if any breakthrough nausea. I am tired so I will take a nap. I guess it will get worse over the next week or 2, so again I appreciate any advice. I also must drink 80 oz. of fluids which will be hard for me. I think most will go through my peg, although I will drink some Powerade/Gatorade and some of my husband's Mocha coffee; mostly hot chocolate with some coffee. One day at a time for right now.

Thanks again for positive thoughts sent my way.

Mary,

I was told to drink 2 liters (68 oz.) per day. That amounts to 4 bottled waters (500 ml. / 16.9 oz.) per day.

I would get a case of water and then take out 4 bottles every morning. Before I went to sleep i should have finished all 4.

Ask your nurse if 2 liters a day is OK

Wow,, this is the 1st time that I have heard 80 ozs. I was told drink a lot but did do 8 bottles od Ice moutain a day which I just figured up. 16.9 oz each . No wonder the Drs liked me for drinking so much and no wonder why I lived in the bathroom. I still go for no less than 6 of them a day. I'm glad you aren't nauseous. I drink 6 coffees in the morning. Good luck Mary.

I would like to add that during Tx, once I became basically PEG dependent the Nutritionist had already calculated my essential fluid requirements into my Liquid diet.

I was on Nutren 1.0 with just 250 calories per can. When I asked about using some of the higher calorie stuff (fewer can to mess with) they politely said no because they wanted to make sure I was getting the fluids I needed (along with the calories).

welcome mary...sending positive vibes your way. hang in there.

Thanks for the info & help; This week was wild. Monday I felt dizzy when I went in & my blood pressure was 82/43. After a liter of fluid it didn't come up, so I was sent to ER where I received 2 more liters of fluid & other stuff to get my pressure up. Now I have eliminated Cozaar as one of my blood pressure pills. I still take metoprolol, but they are wanting me to check with internist if I could cut in half or eliminate as necessary. I was so wiped out that day so they skipped radiation. Tuesday it seemed like I was on the table forever and getting an anxiety attach. I now know that that is the day the doctors go over placement and it could be longer, so will need to psych myself up or take a half xanax.

Wednesday there was trouble with the computer not working right so it was also a longer day on the table which I didn't expect. Thursday was fine, I just for lost in the shuffle for a while, which was OK I was being well entertained in the waiting room. Today was taken care of before I could sit and out fast. This is the first time I have a 2 day break before back for radiation on Monday. Wow, Excitement.

My next inpatient chemo has been set for March 15. What has experience been with anyone? Does it get worse with the second, and third chemo, considering there is constant radiation to be reckoned with? Or do you manage to bounce back a little? This is the first day I haven't felt like sleeping all day. Not that I want to do anything crazy like clean my house or organize the kitchen, but it's nice to just get online for a little bit and be able to think clearly. I've been feeling pretty low energy and fragile lately, and don't want that to last long. I'd rather think good thoughts. Even the little sunshine we've had the last couple of days have been a nice touch.

Thank you all for being here, and I hope I can soon return these words of wisdom and hope to others soon.