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My insurance won't say ahead of time if they'll cover my PET scans so I just have to have it done and HOPE they will or I'm out $5000.00. And you're absolutely right Eric, we already have death panels.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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While I'm on here, this doesn't really rise to the "don't you just hate it" level as I really wasn't offended but it just shows how little people understand the long lasting effects of oral cancer. Last week the dispatcher at work asked if I could work on my day off but I told her I had to have bloodwork done, an xray and a visit with my oncologist. She asked "why are you still doing all that, aren't you all better?". As I say, not offensive, just an honest question from her to fill in a gap in her knowledge.


David R. 65 yr old male non-smoker, light drinker, stage 3 or 4, depending on which doc you ask, scc rt. tonsil, 2 nodes, 7 weeks radiation and chemo. No surgery. Teatment ended 3/20/08. PET scan 8/08 showed no cancer.
And now, as of oct, 2010, caregiver to wife, Linda, with breast cancer.
May, 2013, Linda diagnosed with stage 3 ovarian cancer. Enuf already.
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Why does the waitress feel the need to be overly solicitous and VERY LOUD when Clark orders our lunch? He is NOT DEAF, you loon! She might have said "THERE'S SOMETHING WRONG WITH THIS GUY'S FACE" so that the other patrons could get a good look. I wanted to slap her face.


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Sep 2009
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I had forgotten this incident that happened at a family gathering the summer following my husband's cancer surgery. A cousin (not mine) approached Clark and after they said hello to each other, the cousin says, "Did you have a stroke or something?"

This was almost 2 years ago but the pain inflicted is still raw. My husband is still concerned that this is how others see him. We are blindsided by comments like this. I promised myself that when I hear an insensitive remark, I am going to confront the person by asking why he/she would say something so insensitive and cruel. Or maybe I'll just opt for a good slap in the face. Either way, it will NOT go unnoticed.

I feeling pretty tough. Bring it on.


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Jan 2009
Posts: 1,844
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I really just hate it when people talk slower to me because they think I must have a mental handicap to go along with my facial disfigurement.

Or when we are having a discussion on healthcare and they begin with "I just hate that you got cancer Eric but..." like that somehow makes up for the ignorant statement they are about to make.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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Next time that happens tell them u are so sorry about their speach impediment. if they ask what u mean. Tell them, well u speak so slow.


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
Joined: Mar 2008
Posts: 3,082
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Anita

I hear you loud and clear. I've always lived by the motto that the best defense is a good offense and since the scenario you described is so commonplace and happens so often, I make a point of working into such new meetings that as a result of the cancer surgery, I sound like Dick Clark on the New Year's eve TV shows. People are going to be curious and as you have found out, some are also stupid and thoughtless. And while you can slap someone silly, you can't slap them smart.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Sep 2009
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Charm,

Nice strategy, thanks!

Anita


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Dec 2008
Posts: 1,004
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Dec 2008
Posts: 1,004
My husband always says "you can't fix stupid" always makes me laugh...


Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
Joined: Jan 2010
Posts: 142
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Joined: Jan 2010
Posts: 142
There is a 2006 movie called Idiocracy that pretty well explains why there seem to be more and more stupid people in the world. You only need to watch the first 5-10 minutes after that the movie is too stupid to watch.


55 12/17/09 High Grade Muceopidermoid Carcinoma Alerted by Largo my Mini Schnauzer
1/18/10 Clr PET
1/27/10 Surgery found Perineural invasion
3/22/10 Began Rad
05/05/10 34 rads
8/19/10 Clr Pet Scan
12/13/10 Clr Ultra sound/biopsy
5/4/11 MRI Clear
8/2/11 All Clear
5/25/12 All Clear
6/3/2016 All Clear
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