#11347 07-15-2007 02:20 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | I think I remember Brian saying the OCF site will be updated soon. It might be time to update the page in Roger Ebert, who has suffered some setbacks but with characteristic courage, openess and humor. I love that he is willing to let people see him as a sick person still doing his job:
http://www.suntimes.com/news/metro/355049,cst-nws-ebert24.articleprint
Is there any chance we could get him connected to OCF? Although he doesn't have the typical SCC, he does have oral cancer and he is putting a recognizable face on it for many people.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#11348 07-15-2007 03:01 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I posted about Ebert before and suggested that people here contact him about OCF etc. I put up his personal email address, and I guess you missed all of this. Just do a search for his name here and you'll find the post if you want to contact him. Oral cancer is oral cancer... it does not matter that his is not one of the big ones.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#11349 07-15-2007 06:06 PM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Sorry I forgot or didn't read that Brian, That may have been when I was either swamped with work or recovering from surgery. I will definitely sned him email or a letter. I've been a fan of him as a film critic for years but I just love how he's handling his illness very publicly.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#11350 07-16-2007 12:09 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | I did a search on "all forums" several times for Roger Ebert and nothing came back.  Do you have his email, Nelie?
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#11351 07-16-2007 02:16 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Anne-Marie, I don't know why your search didn't work, I found the topic where this was discussed (and yes it was right at the end of my semester--busy time--not too surprised I missed it). I am pasting Brian's last post there below:
posted April 26, 2007 03:10 PM
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Ebert direct email is below. Please be polite, supportive of his situation and choices, and articulate how much this disease needs a highly visible spokesperson like him. That OCF is out here, and it will help him channel his strengths to do positive in his realm of influence if he would work with us.
Roger Ebert
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#11352 07-16-2007 05:19 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Thanks, Nelie - I just sent Roger Ebert an email. Hope he comes visit us. There is a really good article he wrote on 4/24/07 with good pics in case anyone has not seen it yet: http://www.suntimes.com/news/metro/355049,cst-nws-ebert24.article
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#11353 07-16-2007 03:52 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | I sent him an email as well !! And I told him about the reunion and how chicago was one of the cities I was looking at and how we would be honored to have him attend and join us here as well !
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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