| Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Feb 2010 Posts: 235 | My husband is just now in the stage of meeting with a bunch of doctors to move forward with radiation/chemo. . He has also been contacted by a nutritionist and smoking cessation specialist (Wed is a month he stopped).
However, no one mentioned anything about seeing a dentist. I noticed in various threads people speak about getting teeth removed, dental care,etc. Are the teeth removed as part of the radiation or is it generally a surgical thing(or both). Just wondering if this is another step we should look into it. His teeth are in good shape generally.
Last edited by SusanW; 02-26-2010 06:38 PM.
CG to Spouse BOT, Chemo and radiation started on March 29,2010 Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Susan,
He should see his dentist for a thorough exam before starting treatment to look for any possible problems and have them taken care of before treatment. Healthy teeth are generally not removed because of RT. Generally having a cavity filled or even a root canal after treatment isn�t a problem, but a tooth extraction would be.
In my case I had a small cavity in one of my wisdom teeth, and they recommended removing all 4 wisdom teeth before RT because to do a tooth extraction after RT can be difficult and cause problems (healing and other issues related to ORN). My wisdom teeth were a tight fit in my mouth to begin with and my dentist felt it was best to remove all 4 before treatment, than to risk needed to remove them after treatment.
Also, they recommend using fluoride trays during treatment and in most cases for the rest of your life to minimize tooth decay due to dry mouth issues. So he should have the trays made before treatment begins (but after any teeth extractions that may be needed).
And it is a good idea to have a good cleaning at this point, because his mouth will be pretty sore for a few months after treatment.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | If possible it's best to see a dentist that is very familiar with oral cancer issues. If he's being treated at a CCC they will have such a dentist on staff. If this is not possible do explain in detail his Tx to the dentist. Radiation can damage the blood supply to our teeth and gums and over time this can lead to infection, etc so it common with the old rad method, RT, they would likely recommend pulling all the teeth in harms way. It was also more common to see poor dental hygiene in OC patients. Now with more refined rad methods, IMRT and Tomo, the damage can be greatly lessened and with the advent of HPV+ SCC less patients present themselves with poor dental hygiene so we now see the recommendation to just pull the teeth that will need it anyway, fill cavities, switch out metal fillings, do a thorough cleaning and add daily fluoride treatments.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I had to have mine removed because of the Rad Seed Implants and the rads and chemo. They hit it right on because my jaw bone is dead as they said it would be. The teeth would have decayed causing infections from the dead bone. Now I am glad I listened to them.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Feb 2010 Posts: 235 | He is being treated at Sloan so I would guess that there is someone on staff. They really do have a very complete list of services. The advice here to go to a a place like that is invaluable given the coordination that needs to happen.
We meet with the radiologist next so that seems like a good time to bring it up.
After reading your post David I tried looking up more about Tomo and IMRT.
Are there particular questions that we should be asking about the types of radiation out there and what determines what is used?
Last edited by SusanW; 02-28-2010 10:04 PM.
CG to Spouse BOT, Chemo and radiation started on March 29,2010 Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Both are better than what they use to do and Tomo is a refinement over "normal" IMRT. Of course the Tx facility must have either capability for you to have a choice. Four years ago Moffitt only had IMRT, today they have a Tomo machine. Remember the goal is #1 kill the cancer and #2 spare damage to good cells so Tomo's benefit is to further reduce the damage to lessen the long term side effects from radiation.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Feb 2010 Posts: 235 | Thanks David. your responses are quite helpful. Just read a bunch of stuff about the Tomo and it looks good. Of course, that was from the company that sells it...
Not sure if Sloan has it but it will go on the question list for Friday.
Is the 7 week treatment standard or is it individualized? I just see that number over and over.
Anything else we should think to inquire about?
Last edited by SusanW; 03-01-2010 01:45 PM.
CG to Spouse BOT, Chemo and radiation started on March 29,2010 Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Still pretty standard. Remember the maximum radiation they say they can give us is appx 70 to 72 gray (Gy) units and that is typically administered in 2 Gy units daily so 70 divided by 2 equals 35 days which translates to 7 five day weeks. There is and has been for some time the practice of accelerating the radiation in some cases by say doubling up on Friday and reducing the Tx time by 1 week. Most times it's when chemo is not given concurrently. Again goal #1, Kill the Cancer and goal #2, spare the damage to the good cells. To this end, currently in the HPV arena where previous studies have concluded, at least in the short term, that HPV+ SCC responds better to the typical Tx, some are planning studies to reduce the overall radiation in say 5 Gy unit increments. Planning it may be one thing but getting it approved, funded and full of willing patients may be another.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Susan,
My facility had brand new IG-IMRT machines. They also had a Tomo machine. My RO and the two other second opinions I received preferred the IMRT. I looked into the Tomo and asked about it and they said that they preferred the IMRT to Tomo because it was more versatile (not sure what that means)
I got the feeling that they preferred the IMRT because they just bought them (did they need to pay down that cost?). I might be wrong on that. I was very interested in the Tomo because it is said to have more aiming spots and thus less tissue damage. My RO said this was not the case.
I would be very interested in what Sloan has to say about this issue, as I was never fully convinced that IG-IMRT was better than Tomo. Please post and let me know their opinion.
BTW I know that I am now post treatment and this is just curiosity. I also know that my case is not the same as your husbands, and my results are great so far so no complaints but still curious.
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
| | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Feb 2010 Posts: 235 | I will let you know Fri. after we meet with the radiologist. After reading about the Tomo I was ready to go out and buy one. I find it interesting that your RO preferred the IMRT. The Tomo kind of sounded like the grown up version of the IMRT. Same benefits with less side effects...so now I'm pretty curious myself about it. David, are you saying the standard is based on the safest amount of radiation that can be given? Part of the throw the whole kitchen sink at it approach? Given what I've read here, I'm getting that being aggressive right out of the gate is important. As of now, they are not suggesting any surgery for my husband. Not that I wanted him to have any but it made me a bit nervous given the treat it aggressively suggestions. When I asked why he wasn't suggesting it, the MD said location and size were factors. I figured since he was a well known surgeon and wasn't suggesting cutting I should let him do his job and take his word for it.
CG to Spouse BOT, Chemo and radiation started on March 29,2010 Ended on May 14,2010. LET THE HEALING BEGIN!!!
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