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walknlite #113052 02-24-2010 07:55 AM
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My thoughts and prayers go with you today for your visit Angelia. I have an appt at 1PM to meet with a new PCP. Good luck my vacation retreat buddy.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
EzJim #113071 02-24-2010 12:09 PM
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I'm keeping everything crossed that it's nothing Angelia.

Hugs,

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
Shelley K #113086 02-24-2010 03:42 PM
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Soooooooo WHAT HAPPENED?????


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
davidcpa #113089 02-24-2010 04:08 PM
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I had a biopsy. We will know something Friday. He was concerned because I had all the same symptoms this time as I had the last two times. We have also been told that if it comes back as cancer again he will send us to OU Physicians in Oklahoma City. It said that more than likely I will have to have half of my tongue removed and then reconstruction. We are praying it comes back clear, but all the symptoms lead toward it not coming back clear. My ENt is worried about it as well. So glad that we did not waste anytime this time. Right now the numbing stuff has worn off and I am in a good deal of pain from the biopsy. I am going to bed once the meds kick in.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #113094 02-24-2010 05:17 PM
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Get some rest honey. Hoping its nothing. So sorry you are dealing with this. K


Tongue Cancer T2 N0 M0 /
Total Glossectomy Due to Location of Tumor

Finished all treatments May 25 2007
Surviving!!!
walknlite #113102 02-24-2010 06:16 PM
Joined: Mar 2008
Posts: 3,082
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Angelia

My opinion is that it is time for you to start using that PEG to put some Wine down it tonight and tomorrow until you get the biopsy results on Friday. I know, I know that alcohol does not solve any problems, but there is a reason why the first recorded miracle of Jesus in the Bible was to turn water into wine - or at least that's what the Irish catholic priests always told us altar-boys back in the day wink
Let's hope for the best, and such rapid tumor growth does sound unlikely. As others posted, there are lots of non cancer reasons for your lump, ranging from radiation, water perfusion, scarring, infection etc etc. Sometimes a lump is just a lump. You do deserve a break.
charm

Last edited by Charm2017; 02-24-2010 06:17 PM. Reason: typos

65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #113104 02-24-2010 06:28 PM
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Posts: 1,412
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I hope it is just a lump. As it was not there last week when my ear began to hurt. I saw it on Sunday and the pain got progressively worse. I do have some wine, but not the heavy stuff. I do the pain patch and Lortab, so maybe if I put enough Lortab in my tube...

Last edited by walknlite; 02-24-2010 06:28 PM.

Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #113106 02-24-2010 06:51 PM
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Posts: 3,082
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that's the spirit, I ignored the prescription warnings and routinely put percocet down my PEG with a wine chaser for over two years now and no ill effects. I do avoid the heavy stuff though - no vodka etc. Too much of a good thing for me.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Charm2017 #113109 02-24-2010 07:42 PM
Joined: May 2009
Posts: 1,412
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How do you get rid of the fear? It scares me because the ear pain started last week. I immediately looked at my tongue and felt of it and there was nothing there. Sunday morning I woke up and boom, it was really swollen and there was a big hard raised area. At least we did not waste anytime in getting this thing checked.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #113111 02-24-2010 07:54 PM
Joined: Sep 2009
Posts: 126
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Posts: 126
Angelia, We are praying for a good report and continued healing and strength.

Sharon


Sharon, 57; Hard Palate; T1, High Grade, DX 6-12-09, Surgery, maxillectomy 7-14-09, 33 RT (9-2-09 to 10-19-09); Prothesis (obturator). None smoker, non drinker.
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