| | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | the RO said that his treatment would start again on MARCH 8. she said it would ONLY be 5 IMRT X 2 carboplatin. i do not think that 5 more is going to effect him too much. i know he will be fatigued, maybe nauseous. i hope i am right in assuming this since this is what i am telling him to keep him from freaking. he has made a remarkable recovery. eats 100% orally, all kinds of foods--even steak even though taste buds arent great. weened off of pain meds completely. talks easily (and being a new yorker--really fast and loud lol)  . helps around the house, little stuff but 100% more than before). i am extremely happy with his progress. as much trouble as he had with treatment...i thought he would be in for a loooong recovery. he is still very weak but getting stronger each day.
Teresa
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CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | He can eat now?? How awesome is that. I am still having issued with swallowing. Hurts like the dickens and still choke sometimes. I do not think that 5 treatments wills effect as much now either since he has recovered so quickly.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Teresa, I admire him for being able to eat and especially the STEAK. I can gum the fat tail part until the flavor is gone and then spit it out. He's one of my heros
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Theresa, I was so glad to read this post and hear how Andy is doing. As a New Yorker, I'm particularly glad to hear his voice will be in yelling form when the yankees are back on the field...
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | oh susan, he will yell at that posts cause he is METS all the way lol!
yes, he is eating...anything and everything--a little slower than before but thats ok. i am pleasently shocked and suprised each day. no mucous cups. no pain other than slightly bothersome. his tastebuds are not there yet, eats most things on memory. dry mouth is still a problem. still alot of weakness.
i couldnt have begged for a quicker and better outcome. hes my hero too!!!
Teresa
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CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | That's awesome teresa. andy will do well with those 5 tx left.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Feb 2010 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2010 Posts: 235 | Oh no, a Mets fan??? Well, other than THAT he(and you ) are folks I have great admiration for.
CG to Spouse BOT, Chemo and radiation started on March 29,2010
Ended on May 14,2010. LET THE HEALING BEGIN!!!
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | LOL susan! i only switch to mets when the astros get knocked out...hehehe.
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | ok...UPDATE! andy will get an additional 5 IMRT (BOOST)/ 1 chemo. this will target the tumor in his nasopharynx. march 8-12. then he is DONE . i do not expect he will have any side effects from this other than fatigue/nausea.
Last edited by homershoney; 02-26-2010 11:52 PM.
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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