| | Joined: May 2004 Posts: 218 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Hi,
I am a 6 year survivor this week.
Things were looking bad then.
Life is back to normal in all respects now.
It will go fast and you will get on with your life.
Fight fight fight.
This too shall pass.
God bless.
Robert Hamilton
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
| | | | | Joined: Jul 2006 Posts: 16 Member | | Member
Joined: Jul 2006 Posts: 16 | Shelly,
Thanks for bringing this up as I have just finished my first round of IC as well. All my symptoms are the same except for the crop circles--the mouth sores, thrush, extreme tiredness, acid reflux.
My best to Mike--I'm planning to try to work until after the third round but won't be surprised if I can't make it. My company has been great so far--hopefully it will last.
8/2006: SCC, right lateral tongue, well differentiated, superficially invasive. 10/2009: recurrence, rt lateral tongue, surgery, rt mod neck dissection. 2/2010: metastasized node under left mandible. 3/2010: Induction chemo 3 rounds, Cisplatin, Tax, 5-FU. Surg and rad to follow.
| | | | | Joined: Jan 2010 Posts: 13 Member | | OP Member
Joined: Jan 2010 Posts: 13 | Joy -
I hope you are doing well. Rest and hydrate. We did get a script for magic mouthwash and a refill on the thrush meds just in case before he started round 2 - needed the thrush meds but no mouth sores. I was expecting they would be worse. One small blessing in all this, I guess.
Mike found he would wake up feeling pretty darn good, and a few hours later would just 'crash'. I hope you are able to continue working as long as you want and that your company continues to support you.
One thing I don't think I've mentioned is that Mike is almost always COLD. He'll be fine, then suddenly gets chilled and then can't warm up, and the cold wears him down fast.
Am thinking about you hoping its going well!
Shelly
Caregiver/wife to Mike, age 48 used chewing tobacco - quit
SCC BOT T2N3M0 Diagnosed Dec 29, 09 HPV+
L ND Jan 7 removed 31 nodes, 6 positive Bilat mets neck
Siteman Cancer Center
Port in Jan 27, Peg in Mar 3
IC 28 Jan & 18 Feb - TPF
CRT Cisplatin x3 start March 10th
| | | | | Joined: Feb 2010 Posts: 6 Member | | Member
Joined: Feb 2010 Posts: 6 | hi everyone, just been reading the notes and am in the same position as i started my treatment on Wednesday 3rd March 2010 . three days of rd ther and 1 full day with Cisplatin chemo. am resting and drinking lots of water today. coming to terms with all the meds, scripts etc . medication keeping the nausea at bay thank god. and have been given mouthwashes and stuff for thrush. such tiredness though on those three evenings i was in bed by 8 and 9 oclock but woke up feeling good at 7 am next morning. feel the cold too myself and cant bear even a draught. otherwise feeling ok and its great to read these posts and hope i can find my way round a bit better as time goes on... god bless Rose10 | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | It all takes time Rose. But it seems to pass quickly. LOL I wish the pain would pass too.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2009 Posts: 618 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Sep 2009 Posts: 618 | Rose,
I have a small electric blanket that my wife got me. It is not the full sized one you get for a bed but is perfect for covering my legs and chest while I sit in my chair in the living room.
I am about 4 months out of treatment and don't use it much any more but it was a constant companion when I was being treated.
My son also liked getting me hot water bottles. Those help too. Anything to take the edge off the chill is nice.
Good luck on the rest of treatment.
Kelly
Male
48, SCC (Soft Palet) Rt.,
Stage 1, T3n0m0,
Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09
04-20-10 NED
8-11 recurrence, node rt. neck N2b
10-11 33 IMRT w/chemo wkly
3-12-12 PET - residual cancer
4-12 5 treatments with Cyberknife & Erbitux
6-19-12 Pet scan CLEAR
12-3-12 PET - CLEAR
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | The ladies at my church made me a quilt as they do for all cancer patients. I also stand in the shower and keep making it hotter by turning the cold down until the water burns a good bit, then I let the water spray on my neck and mouth one side at a time and keep changing from one side to the other. I don't know if it helps, but to me it takes some of the pain away for awhile.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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