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Pandora99 #110400 01-15-2010 05:50 AM
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Angelia you are certainly travelling a bumpy road. Your strength is a true inspiration. Take care and hope you are feeling better soon.

Wendy


Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
WendyG #110403 01-15-2010 07:03 AM
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My Primay Dr. for this hopsital came to see me this morning. I have to have more blood transfusions. My stomach looked good. It is my esophagus that caused all the bleeding. My husband told me last night that they are going to have to watch real close because it is really bad and I may be here for the duration. Hopefully they can get my blood counts up. I still had treatment yesterday and will bave it today, but later in the day after I get more blood. This has all been kind of scary for me. As I have never been in the hopsital for any length of time except to have my boys. When my RO saw me yesterday he did not waste time in telling us seriousness of low blood counts and radiation. I am just glad I drove the hour Wed. evening to the hopsital where I am being treated at. I really do miss my kids. We had to leave Wed. evening after they were asleep, so they had no idea mommy and daddy were gone. I will get to see them tonight for a few hours. I do really enjoy the pampering, if you will, I get here at the hospital. I sure was not taken care of like this at home.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #110410 01-15-2010 08:57 AM
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My goodness Angelia, if it's not one thing it's three for you isn't it. Sorry to hear of your difficulties through this treatment process. Hang tough and keep fighting and do absorb all the pampering the hospital staff are providing. Hope you will soon be on the mend and back home with your family.


Caregiver to husband Dx. Stage 4 SCC of gingiva with 3 nodes pos. Partial mandiblectomy with bone graft from iliac crest Dec. 2006. IMRT x30, Cisplatin x3. Completed Tx. March 15, 2007. Osteonecrosis & removal of graft & plate Oct. 2007. Recurrence of SCC Dec. 2007. Deceased Jan. 17, 2008.
wallyswife #110411 01-15-2010 09:23 AM
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Angelia:
Just want you to know I, too, am thinking of you and sending my prayers for you to get over this latest set-back, and successfully finish your treatments. All your posts show your amazing fighting spirit, so I know you can do it. Enjoy the pampering, while you can.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile
julieann #110420 01-15-2010 10:40 AM
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I did have treatment today and am now getting my second blood transfusion. the best part is that I only have 11 treatments left.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
julieann #110421 01-15-2010 10:41 AM
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Wow Angelia - tough way to get some "pampering". So sorry that you are having all these additional issues. As hard as it is being in the hospital, it will force you to focus on you and your treatments and recovery. I will keep you in my prayers and hope that things get better soon. How many more treatments do you have? Sending you a BIG HUG!


Wanda (47) caregiver to husband John (56) age at diag.(2009)
1-13-09 diagnosed Stage IV BOT SCC (HPV+)
2-12-09 PEG placed, 7-6-09 removed
Cisplatin 7 weeks, 7 weeks (35) IMRT
4-15-09 - treatment completed
8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear
4-2013 - HBO (30 dives) tooth extraction
10-2019 - tooth extraction, HBO (10 dives)
11-2019 - Left lateral tongue SCC - Stage 2
slim #110422 01-15-2010 11:40 AM
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You poor thing, I feel so bad you are having to go through all of this. Saying my prayers that all will be well. You are one tough lady, hang in there. Just remember, you're that much closer to being done.

Big Hugs,

Shelley


Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
Shelley K #110425 01-15-2010 02:35 PM
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Hi Angelia,
Tough way to get pampered, I think you will need a trip to a spa in a couple of months! Hope you get to go home soon, thinking of you

Steve


70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now

Just way glad to be seeing the green side up!




Pandora99 #110426 01-15-2010 02:36 PM
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When I think of you I think of that Donna Summers song from the late 70's "I will survive". Just keep going...one step at a time and you'll get through this crap.


DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
Carmen M #110428 01-15-2010 03:55 PM
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Angelia,,watch that esophagus close. My cardiologist ignored my pains and kept feeding me aspirin and heart drugs. Then I got scoped by a new Gatrointologist in the area and he threw all of the heart meds away and sent me to Pittsburgh for a test where they put tubes thru your nose to the stomache while you are hooked to a machine you take home with you for 24 hrs, The next day when they took it off, my acid was off the chart.My esophagus looked like raw uncerated liver they told me. Right after I had to have surgery for it where they wrap 1/3 of your stomache around it.. Just be careful of acids even some fruit and a lot of foods. I hated to hear this with all the problems you have already. Maybe a scope some day for you ?? Get well and I'll pray for you.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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