| Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Jul 2009 Posts: 453 | Angelia you are certainly travelling a bumpy road. Your strength is a true inspiration. Take care and hope you are feeling better soon.
Wendy
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone No surgery Teeth removed 06/07/2009 radiation 13/07/2009 x 7wks chemo 15/07/2009 x 3 Cisplatin last TX 28/08/2009 25/11/2009 PET-lymph node activity. 08/01/2010 CT Scan-ALL CLEAR 03/03/2010-Peg removed 01/2013 left side of Jaw removed and replaced with pectoral flap. 23/12/2020 scan show lesion in tongue 01/2021 SCC stage 3 base of tongue diagnosed 01/03/2021 chemotherapy started.
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | My Primay Dr. for this hopsital came to see me this morning. I have to have more blood transfusions. My stomach looked good. It is my esophagus that caused all the bleeding. My husband told me last night that they are going to have to watch real close because it is really bad and I may be here for the duration. Hopefully they can get my blood counts up. I still had treatment yesterday and will bave it today, but later in the day after I get more blood. This has all been kind of scary for me. As I have never been in the hopsital for any length of time except to have my boys. When my RO saw me yesterday he did not waste time in telling us seriousness of low blood counts and radiation. I am just glad I drove the hour Wed. evening to the hopsital where I am being treated at. I really do miss my kids. We had to leave Wed. evening after they were asleep, so they had no idea mommy and daddy were gone. I will get to see them tonight for a few hours. I do really enjoy the pampering, if you will, I get here at the hospital. I sure was not taken care of like this at home.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Oct 2007 Posts: 104 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Oct 2007 Posts: 104 | My goodness Angelia, if it's not one thing it's three for you isn't it. Sorry to hear of your difficulties through this treatment process. Hang tough and keep fighting and do absorb all the pampering the hospital staff are providing. Hope you will soon be on the mend and back home with your family.
Caregiver to husband Dx. Stage 4 SCC of gingiva with 3 nodes pos. Partial mandiblectomy with bone graft from iliac crest Dec. 2006. IMRT x30, Cisplatin x3. Completed Tx. March 15, 2007. Osteonecrosis & removal of graft & plate Oct. 2007. Recurrence of SCC Dec. 2007. Deceased Jan. 17, 2008.
| | | | Joined: Jun 2009 Posts: 875 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jun 2009 Posts: 875 | Angelia: Just want you to know I, too, am thinking of you and sending my prayers for you to get over this latest set-back, and successfully finish your treatments. All your posts show your amazing fighting spirit, so I know you can do it. Enjoy the pampering, while you can. julieann
Julieann Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I did have treatment today and am now getting my second blood transfusion. the best part is that I only have 11 treatments left.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jan 2009 Posts: 476 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Jan 2009 Posts: 476 | Wow Angelia - tough way to get some "pampering". So sorry that you are having all these additional issues. As hard as it is being in the hospital, it will force you to focus on you and your treatments and recovery. I will keep you in my prayers and hope that things get better soon. How many more treatments do you have? Sending you a BIG HUG!
Wanda (47) caregiver to husband John (56) age at diag.(2009) 1-13-09 diagnosed Stage IV BOT SCC (HPV+) 2-12-09 PEG placed, 7-6-09 removed Cisplatin 7 weeks, 7 weeks (35) IMRT 4-15-09 - treatment completed 8-09,12-09-CT Scans clear, 4-10,6-11-PET Scans clear 4-2013 - HBO (30 dives) tooth extraction 10-2019 - tooth extraction, HBO (10 dives) 11-2019 - Left lateral tongue SCC - Stage 2
| | | | Joined: Aug 2005 Posts: 307 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Aug 2005 Posts: 307 | You poor thing, I feel so bad you are having to go through all of this. Saying my prayers that all will be well. You are one tough lady, hang in there. Just remember, you're that much closer to being done.
Big Hugs,
Shelley
Caregiver to husband Ron. Throat Cancer. Finished 35 radiation treatments on 11/21/04. 8/2/11 small lesion on lower gum, laser Procedure to remove. 3/6/12 Doc. removed another lesion on outside of his neck. Did a skin graft from his chest to replace the skin on his neck. Went to Heaven on 6/24/12.
| | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Nov 2009 Posts: 212 | Hi Angelia, Tough way to get pampered, I think you will need a trip to a spa in a couple of months! Hope you get to go home soon, thinking of you
Steve
70 male, athlete...again SSC of undetermined orgin , early july 09 40 tx radiation, 8 chemo cisplatin and ebuterx finished TX in mid Sept 09 Clear at the 6 year mark! Back to swimming, biking and running! just a tad slower never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Mar 2009 Posts: 147 | When I think of you I think of that Donna Summers song from the late 70's "I will survive". Just keep going...one step at a time and you'll get through this crap.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10 | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | Angelia,,watch that esophagus close. My cardiologist ignored my pains and kept feeding me aspirin and heart drugs. Then I got scoped by a new Gatrointologist in the area and he threw all of the heart meds away and sent me to Pittsburgh for a test where they put tubes thru your nose to the stomache while you are hooked to a machine you take home with you for 24 hrs, The next day when they took it off, my acid was off the chart.My esophagus looked like raw uncerated liver they told me. Right after I had to have surgery for it where they wrap 1/3 of your stomache around it.. Just be careful of acids even some fruit and a lot of foods. I hated to hear this with all the problems you have already. Maybe a scope some day for you ?? Get well and I'll pray for you.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
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