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Jerry,

Google found this:

http://cat.inist.fr/?aModele=afficheN&cpsidt=16268451

From the Abstract:

"HPV was significantly more common in base of tongue tumors (10/25, 40.0%) compared to tumors of the mobile tongue (2/85, 2.3%)."

Not sure where I originally read this though. And I could be completely misunderstanding - I am NOT a medical professional, after all smile

Last edited by margaret_in_ma; 12-30-2009 08:18 PM. Reason: added quote

Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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I've never for one moment asked "why me?" The history of my own cancer seems so clear cut and simple. We've always heard the "sore that doesn't heal" warning. I developed "lichen planus" about 12 years ago on the right side of my tongue - right where it laid against an amalgam that had just been replaced. A dermatologist sent me for allergy testing last year, and sure enough, I'm very sensitive to the Mercury in the amalgam, and Nickel in the base of my crowns. So... let's get it out, right? The dentist who removed that amalgam told me immediately that it was "not right - too soft and too shiny." Turns out they used to mix this stuff manually and didn't always get the mix right. So, now we see that this lichen planus is really a contact dermatitis, that finally went "bad" and turned cancerous.

I don't smoke, don't drink, and don't have HPV. I asked my doc how much would it take to add a simple screening tool on the pages that all new cancer patients complete. He's a respected researcher - his reply was, "I'm an immunologist." I begged him to go home and talk to his wife - who is the doctor in the dermatology clinic where my patch test was done.

What I find so frustrating is the unwillingness of the medical folks to even consider other possible environmental causes. As my friend, Freya Koss, has testified, why is it that the only safe place for Mercury seems to be in my mouth? I realize that the ADA is likely petrified of liability issues, and they have "dug in" to state that mercury amalgam is entirely safe. And yet... and yet... do you know they recapture that amalgam that is removed from old fillings? Too toxic for the waste system.

Anyway, all this information was too little too late for me. By the time the tests were done, and fillings removed, the sore had turned cancerous. However, the white spots are now gone.


1998 1 Amalgam replaced->oral lichen planus R lat tongue; 1999 biopsy "no cancer-looks like uses smokeless tobacco"; 5/08 allergy testing pos to filling & crown metal; 9/08 replace amalgam fillings; 1/09 Partial glossectomy; 5/09 total glossectomy & free flap; rad & chemo just completed.
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it is just our nature to ask why. just ask any 4 year old, their entire vocabulary is "but why?... why?...why?"

i like the quote:
sometimes we'll find the answer,
sometimes we wont,
sometimes we think we have the answer,
when clearly we dont.

its a natural curiosity that resides in us all. the quest for knowledge, after all...knowledge is power.


Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
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interesting about the filling - i totally forgot my original 'ulcer' was right next to the only filling i have and its a metal one...



stage 2 scc in left oral tongue. 32 at dx
removed 21/12/09 plus left neck dissection and upper arm flap.
clear pathology 24/12/09
non-smoker
active footballer/surfer
social drinker
lives stress-free!
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wow. I had one filling in my mouth, a metal one right where my tumor was. I developed leukoplakia around that tooth and down the side of my cheek where the tumor eventually took up.

That's incredibly interesting.


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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I too developed lichen planus a decade or so ago and was also declared allergic to mercury and amalgam itself. Not to nickel as far as I can remember. Replacing the fillings had no effect on the lichen planus on the left side of my tongue and after a couple of years I was finally biopsied and found to have SCC. This was in 2007. I think I was told that either I was one of the very few whose lichen planus turned nasty OR it had never been lichen planus. (However, in the pathology report from my recent recurrance surgery a lichenoid reaction was found in some of the tissue.)

I have written my story in my blog.

I would be very cautious about attributing my cancer to my amalgam fillings. There doesn't appear to be any scientific evidence. My bitterness if any is caused by the failure of an oral surgeon to biopsy me when I went to him with a very sore localised patch of lichen planus. An oral medicine specialist I later visited (an old man) said that he tells people to biopsy all patients with lichen planus like mine - just to make sure.

On the other hand, like many of my generation of New Zealanders I had a mouthful of amalgam fillings. Maybe I was more sensitive than most? I started to have mouth inflammation problems in my 30s.


1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
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Being a CPA, I like things that fit into a box or fits the answer A, B or C so now I kinda feel lucky that I tested positive for HPV and I can label that as my cause. I feel frustrated for the new breed that are HPV-, non smoking with primaries in the tongue especially the ones like me that HAD to know.

After being around the research types for a few years now and seeing what goes into planning a study and getting funding for it, I realize that it would be almost impossible to even plan a study around the possible causes mentioned above in the last few posts.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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[quote=Alpaca] I would be very cautious about attributing my cancer to my amalgam fillings. There doesn't appear to be any scientific evidence.

Well, maybe I am just simple-minded or something. But this just screams to me "well, then, let's look for evidence!"

This is what I asked my surgeon to do - start with a screening tool. Don't just stand there looking at your feet!

My *former* dentist told me that I am "just one person." Well, I have a hunch that there are a whole lot more just like me! We just need to find them.


1998 1 Amalgam replaced->oral lichen planus R lat tongue; 1999 biopsy "no cancer-looks like uses smokeless tobacco"; 5/08 allergy testing pos to filling & crown metal; 9/08 replace amalgam fillings; 1/09 Partial glossectomy; 5/09 total glossectomy & free flap; rad & chemo just completed.
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To all my OCF Family....Happy, Happy New Year 2010 ! All my best wishes to us all for Health, Happiness, Prosperity, Healing and Clean & Clear Test Results...forever more !!!


BOT T3N2M0 No surgery, 38radiation treatments,4 chemo rounds, peg removed 11/08, still have a port. Treatments ended 6/20/08. So far, so Good ! "I know God won't give me anything I can't handle. I just wish He didn't trust me so much !"

*** Admin update --- Dianne has passed away on August 25, 2015 ***
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Linda

It is frustrating to know that certain avenues of cancer will never be explored because the only people who are qualified to explore it have concluded there is nothing to explore. See this recent article in April 2009
Amalgam Fillings Safe
I have amalgam fillings older than many of the young posters here - yes I mean you EricS & Suzanne wink - They really never wear out unlike the composites. When I had three crowns done after the first radiation, my prothodontist was amazed at how amalgam fillings done over 40 years ago looked brand new as he removed them to prepare for the crowns. Since he only puts in composites, he had assumed these old fillings would have broken down like the composites. He replaced them anyway.
Happy New Year
charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
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