| | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Hey forum buddies, I just want to say thank you for kicking me in my rear. I was in my mood that I did not care what happened to me. I am much better now. I have actually been able to get some nutrients in my system today and feel a whole lot better. Not near as much as I should, but I am getting there. I have made it a goal of mine to at least get up to 1500 calories and then work from there. If it wasn't for many of you I do not think I would have got out of my little funk. I did get a break today and tomorrow cause of the swelling of my uvula. The RO was concerned that it would only get worse and block off my airway. He is going to check it again on Wednesday to make sure the swelling has gone down. Leave it to me to go to the extreme on things. I am very good at that. My parents are here until Wednesday and they have been a great help with the kids and have also helped me get out of my funk. We are doing Christmas with them tomorrow afternoon. My brother and grandpa are coming up to. I am excited to get to see them as i was afraid I was not going to be able to, but my Grandpa was chomping at the bit to come see me for Christmas. SOrry it was so long, but my spirits are better, and I believe that I am going to make it now. You guys are awesome.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Nov 2009 Posts: 92 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2009 Posts: 92 | Glad to hear your second wind's kicked in.
I feel for you on the uvula front - tonsillectomy end of Oct. - uvula swelling was horrible for me - hope yours goes down soon. Sounds like a great Christmas is coming your way - good.
44 at 10-26-2009 Dx; SCC, T2N2b, St.IV BOT; Rt. Tonsil out; PET 11-12-09 (3 spots); 3 rds Cisplatin, Taxotere and 5-FU started 11-19-09; PEG 12-24-09; 7 wks chemo-rads done 03-16-10. 06-28 CT/PET watching 1 node; PEG out; 11-15 CT - larger; 11-23 PET activity up; mrdc 12-21; 04-01-11 CLEAN SCANS! ; March 2018 new SCC - Meet with surgeon 4-4-18
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Angelia, if the truth is known, we all have our real down days and then something winds a spring inside out heads and bodies and we get the determination back to go another 15 rounds and win. Merry Christmas
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2009 Posts: 453 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Jul 2009 Posts: 453 | Angelia, you are allowed to have bad days. We all do. The guys here have gotten me through many a bad moment and for that I am truly grateful. Just remember you are never alone. Whatever you are going through or feeling, you can pretty much bet someone here has gone through or felt the same. I'm so glad you are feeling better and even happier for you that your family are there with you. Enjoy your christmas.
Wife to Steve 43. DX 5 May 09. T4N2MO SCC tongue, floor of mouth, lymph nodes & jaw bone
No surgery
Teeth removed 06/07/2009
radiation 13/07/2009 x 7wks
chemo 15/07/2009 x 3 Cisplatin
last TX 28/08/2009
25/11/2009 PET-lymph node activity.
08/01/2010 CT Scan-ALL CLEAR
03/03/2010-Peg removed
01/2013 left side of Jaw removed and replaced with pectoral flap.
23/12/2020 scan show lesion in tongue
01/2021 SCC stage 3 base of tongue diagnosed
01/03/2021 chemotherapy started.
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Glad to hear that you are feeling better and I hope you had a wonderful time with your family today.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Glad to hear that you are doing better and hope goes well from now on. Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Angelia Im so glad to read such a positive post. Its great to hear you are getting more nutrition and feeling a little better. It took a while but you finally understood good nutrition and hydration equal feeling good. Your spirits are up. Im sure all your family there is a comfort to you. It will give you the help you need so you can rest. Enjoy your holiday with your loved ones. Merry Christmas 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | angelia,
im so glad to see u in better spirits! enjoy ur family and have a very Merry Christmas!
teresa
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Mar 2009 Posts: 10 Member | | Member
Joined: Mar 2009 Posts: 10 | Angelia, I am over the border in FS ark. I know the snow hit OK hard. Hope your family is ok for it. My wife/caregiver is 66 years old and it is the first Christmas she has had with snow. I told her living in Virginia Beach wasn't good for her! LOL We only got 5" so we are good. Best wishes to you and yours.
bob
I have found that attitude can make a world of difference.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Bob,
Thanks for checking on me. We are good, but were snowed in for a few days. I loved the snow and it was a welcome Christmas present. I had been wanting a white Christmas now for years and I finally got one. This was a first for my little boys and they loved playing out in the snow with their daddy. We came down to Tulsa tonight so that we would a shorter drive tomorrow morning for treatment. There sure is a lot of snow out there especially for OK as we ar enot used to this much snow and people have now idea how to drive in it.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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