#10895 06-07-2007 05:56 AM | Joined: Dec 2006 Posts: 21 Member | OP  Member
Joined: Dec 2006 Posts: 21 | Hello everyone,
Thanks for all your input about getting/not getting a PEG. After thinking it over, I decided it was definately the right thing to do for me.
I had it done 2 days ago and spent a day and a 1/2 in the hospital following the procedure.
There was a lot of pain for me. I had to be on Morphine for awhile.
Today I am coughing a bit for some reason and it does not feel very good!!!! I will be fine though.
Again, thanks to all for your advise, especially Petey.
Tongue cancer diagnosed 12/01. Tumor removed. No chemo, no radiation. Early stage 3 SCC of the tongue recurrance 12/06, well differentiated. Hemiglossectomy, free flap, neck dissection 3/26/07. IMRT Tx finished 8-7-07(30 Tx's). No chemo.
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#10896 06-07-2007 06:29 AM | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | I think you'll be glad you did. I was !
Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | |
#10897 06-07-2007 07:19 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Rob had to have his peg loosened because they had fastened it too tight and it was causing him pain.Dont be in pain too long without checking it out cos it is a very easy correction.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#10898 06-07-2007 07:19 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 |
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#10899 06-07-2007 07:20 AM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | By the way glad you decided to go for it.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#10900 06-07-2007 08:19 AM | Joined: May 2007 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2007 Posts: 61 | You will be so thankful you have it. I was also in a good amount of pain afterwards-especially laughing or coughing. The dr said it could've been too tight. I decided to leave it tho cuz I knew I'd lose weight, which I did & I was glad I had left it. I cannot tell you how glad you are going to be to have that.
SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.
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#10901 06-07-2007 10:54 AM | Joined: Mar 2007 Posts: 179 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2007 Posts: 179 | You did the right thing! Wished we would of done it much sooner, I think we would of saved ourselves a lot of grief. We are almost 6 wks out from our Rad treatments and ready to start our second rounds of chemo on Monday. So I feel so much better knowing he won't be dehydrated this time around. I am thinking we will have the peg in to aleast the end of Aug. and we got it April 4th. Good luck and God bless.
CG to husband 53,39 rads. 3 rds cisplastin ended 6/2/07 Tonsils removed 1.10.07 11 of 20 nodes positive- lump removed on rt. side of neck 1/26/07 cancer of nasal pharnyx TXN2MX 2nd rd. of chemo- carbo/taxol on 6/11/07
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