| | Joined: Nov 2008 Posts: 17 Member |  Member
Joined: Nov 2008 Posts: 17 | Please hang in there. i'm with you in my thoughts and added you as a prayer person tonight. did you dentis just find this on your floor of mouth? i got a biopsy for the same today. i'm dumb founded and scared to death. you will do fine! i'm a survivor of soft palate. 5/2008. i got my one year good to go in 7/2009. now this new diagnosis. it really sucks. but i was told and i'm sure yo have been too. God never hands us more than we can take." Bless you and your recovery! | | | | | Joined: Jun 2009 Posts: 138 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Jun 2009 Posts: 138 | I'm trying hard to hang in there. I had my first radiation today and tomorrow I have my first chemo-radiation day. I had an appt. with the chemo nurse to explain all the side effects before I go tomorrow and some rules to follow. I am certain I can make it through one time, but oh I would just be a mental case if it recurred after all this. I was already told once when they removed the thing under my tongue that I was "cured". Next thing you know it's in my lymph nodes. I know they are radiating both sides of my neck and under my chin, so I hope it doesn't go anywhere else but when I read about cancer that has spread to the lymph nodes I don't see much good news. I had a neck dissection but the lymph nodes that were cancerous were poorly differentiated so I guess anything can happen if they don't get it all killed.
BOT-SCC Partial glossectomy 7/16/09.
Stage IV, Rt ND 10/2/09.
Teeth out 11/5/09.
Port/peg in, 11/20/09.
7 wks rad & chemo, end 1/22/10
lung, colon biopsies 1/9/11 - both cancer
colon resect surg 1/10/11
Folfox + Avastin - discontinued 6/11
lung surgery 3/13/12, 5/1/12
mets to liver and bones
passed away 9/4/13
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | I found it helpful to go to the chemo drug's website to get all the info on side effects. My husband had some that were deemed "not" effects of the chemo but when I checked it out they were listed on the website. It's important to be well informed so you don't panic if you have unexpected issues. Best of luck to you!
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Bloop,
I was Dx'ed a Stage IV and had nodal involvement and I'm alive and kicking 3 plus years post Tx so have confidence in your doctors and your Tx and you too can beat this crap.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Bloop,
You will get through this. I now have fours days behind me and each days gets easier laying on that tables. I have gotten to where I know the sounds and when it is over. I also listen to music while am in there and think of happy places I would like to visit and visualize them in my head. YOU WILL GET THROUGH THIS!
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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