Hi - I was diagnosed with Adenoid Cystic Carcinoma of the right nasal septum in mid 2005, after an op to remove what I thought was a polyp....
Since then, it has recurred three times - the most recent in November 2009 - I have just been told that there are three more nodules visible, so I am just about to face my 8th operation....
To date, surgery (resection) has been the only form of treatment and I wonder if more radical treatment should now be put in place. So far I have been lucky, as it has been slow growing and no obvious outward signs, but from what little research and knowledge there is on this (particularly here in Australia) I am concerned at the long term prognosis.
Would love any information at all - and if you know anyone or anywhere in Australia that I could get info, that would be very much appreciated.
Meri
