| | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | i am new to the board, and am introducing myself.
my husband has undifferentiated neoplasm of the nasopharynx with squamous cell carcinoma, aka nasopharyngeal carcinoma (NPC) stage 4. he has already completed 3 rounds of chemo. has a port, is scheduled to get the PEG. his 7 weeks of radiation starts dec 1.
he handled the chemo quite well, compared to others, although each round got harder and harder.
does anyone else have NPC???
GOD bless!
Teresa
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CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Honey,
Sorry that you both are dealing with this cancer but you have found the best site in the world to help you both get through this Tx and recovery.
The rad potentially has some nasty side effects that include loss of taste and saliva certainly depending upon the radiation field. Most of us also lost a ton a weight so if he can, encourage him to eat eat eat and then eat some more until the effects of the rad kick in. I also wouldn't worry about what I was eating either.
What chemo did they start with?
Are they planning more with the radiation?
Please don't hesitate to ask or share anything 24/7. You can also rant and rave as you see fit as we have all been there and done it.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2009 Posts: 396 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2009 Posts: 396 | thank u for ur response.
his cocktail was 5-FU, cisplatin, and docetaxel. he will start radiation nov 30 (35) and once a week chemo.
some stats: T2N2bM1 stage 4. 43 @ dx NPC + SCC, port, PEG.
his primary tumor is in his nasopharyngeal tonsil (top of throat-behind nose)-non operable. The other tumors are in his lymph nodes and nasal passages.
his pinpoint rad will be in his throat area.
since he lost approx 30 lbs thru chemo, i have been trying sooooo hard to fatten him up now, he has put on 7 lbs, i have put on 15 (grrrrrrrr). he was 6'3" 230, now is 207. he is pretty lean right now. i am hoping Thanksgiving Day will help him along too.
i am sure i will be a frequent poster.
he had another PET scan today, we will get the results monday. oncologist wanted this done before rads started.
thanks again!
Teresa
-----------
CG to ANDY. Nasopharyngeal Carcinoma (NPC)
T2N2cMxG4 stage 4. 43 @ dx 8/31/09
tx 9/21/09-11/06/09 cispatin/docetaxel/5-FU X3
PORT 9/9/09, PEG 12/07/09
35 IMRT-1/wk carbo 11/30/09-2/3/10
tx stopped due to complications
IMRT BOOST 3/08-3/12/10
PET 4/12/10 CLEAR!
PEG out 4/14/10
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Be careful of the Cisplatin as it can cause permanent high frequency hearing loss. If he hears "ringing in his ears" tell his MO immediately.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: May 2009 Posts: 1,412 | Welcome to the forum. This is a great place for support and encouragement. Like David said feel free to rant and rave. I have done my fair share of it. I will be starting my radiations and chemo right after Thanksgiving as well. Keep us posted on how your husband is doing and how you are holding up as well. This crud effects everyone not just the patients.
Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
| | | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | welcome to the forum. There is tons of great info here. Make sure you look at the topic pull down and search.
good luck, we are with you two
STEVE
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
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