| | Joined: Apr 2009 Posts: 75 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Apr 2009 Posts: 75 | Hi:
I was wondering if anyone could help me. My dad got his Pet Scan results about 2 weeks ago, all clear thank God. However, His throat got all congested over the past few days. We just took him to the hospital and they admitted him. My dad claims that his tongue is swollen (he never said anything before about this). The doctors thought his throat sounded congested. Does this seem familiar to anyone? His labs came back fine. Does this disease ever end? Please respond.
Chris
Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have congestion a lot.It seems to be from the mucous we get and from ear and nasal drainage to me. Just another have to put up with it problem. It could also be nasal drip which I also get. I bet most in here get the same.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Try a humidifier and keeping his head propped up on pillows. Not a cure all but seems to help me when I have those symptoms (Which used to be more frequent after my treatment).
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | | Joined: Apr 2009 Posts: 75 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Apr 2009 Posts: 75 | Hi
Update. My dad got an emergency tracheostomy last night. His throat was almost completely closed. His tongue swollen and his vocal cords all swollen. Drs think it could have been from a cold, virus or from the radiation. I will update.
Squamous cell / BOT with lymph node involvment, Stage 4, HIV-, cisplatin 3 weeks of 7, stopped due to kidney issues and neuropathy,35 radiation treatment started 5/6/09,started weekly erbitux on 6/2/09. Completed tx on 6/24/09, biopsy 8/11/09 clean, PET Scan 10/5/09 clear, PET Scan 6/11/10 clear
| | | | | Joined: Nov 2006 Posts: 93 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2006 Posts: 93 | Glad your Dad got the care he needed.
caregiver to husband
right tonsil stage 3
35 IMRT TX completed 1/5/2007
PET Scan clear 3/07
biopsy 9/07 clear
1st yr PET scan 12/18/07 clear
| | | | | Joined: Aug 2009 Posts: 90 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2009 Posts: 90 | Sorry to hear about your dad, he's in the right place
caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09
| | | | | Joined: Aug 2009 Posts: 9 Member | | Member
Joined: Aug 2009 Posts: 9 | My husband is out of radiation treatment for four weeks now. His congestion and extremely sticky mucous in the throat are still persistent. He still has his PEG tube and has yet to be able to get anything to go down by mouth. When can I expect that he will be able to begin eating by mouth? I honestly feel that his recovery will be a quicker one when he can begin eating again. Am I wrong? Taminole in Arkansas | | | | | Joined: Mar 2009 Posts: 147 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 147 | As far as I was concerned you are correct in assuming recovery will go better once he starts eating again. It was definately that way for me. I too had the thick mucos through out treatment and it persisted really bad for about 6 weeks post radiation. However, subborness made me start eating soft salty items at about 4 weeks. Salty because that was the only thing i could taste. Once I started eating, my recovery really sped up. I had my PEG removed at 9 weeks post treatment, Good Luck to both of you. I thank heavens daily for my good husband's care and cheerleading.
DX 2/10/09; Stage 1 SCC side of tongue; Partial Gloss; PEG in 3/3/09; 3 Cisplatin; 35 IMRT; PEG out 7/17/09; Eating via mouth and walking 3 miles/day 4 wks after treatment end. 50 pound weight loss; Clear PET 09/09 and 09/10
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Taminole,
Has he not eaten by mouth by choice, pain or stricture?
1. If by choice he needs to start swallowing ASAP and gradually build up to some solid stuff.
2. If by pain, then that needs to be death with and then follow number 1. above.
3. If by stricture, then he needs to be seen by a competent doctor ASAP.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Aug 2009 Posts: 9 Member | | Member
Joined: Aug 2009 Posts: 9 | Thanks David and Carmen:
I will be showing this to my husband as soon as I get home this evening. I am not sure exactly why he has not yet decided to eat. I have tried to get him to begin with broth and work up to some solid stuff, but he has just had no interest in trying. I think he is scared to try. He continues to get 4-5 cans of the Tube Feeding formula down, but I feel that he should start working on eating so that he can heal a bit faster.. He does not return to his doctor until November 17, so that is a ways off. I can't tell if he has a stricture in there or not, because he won't try to eat anything. If he does, we will certainly get him to Little Rock to see his doctor ASAP. Thanks for the advice and God bless you both.
Taminole | | |
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