Previous Thread
Next Thread
Print Thread
#105694 10-24-2009 07:46 AM
Joined: Jun 2009
Posts: 13
Bobster Offline OP
Member
OP Offline
Member

Joined: Jun 2009
Posts: 13
I was scheduled for my first post treatment PET/CT scan and the pre scan instructions were: no food 4 hours before scan, no caffine and no strenous excercise 24 hours before scan. I arrived for the scan chewing gum, the one relief I get for dry mouth. They would not do the scan due to the chewing gum since the activity of the jaw muscles would distort the PET scan results, so it was rescheduled. Be sure that you take nothing for granted and ask the dumbest questions you can ask. This can only save you time, but more importantly, a distorted scan.


Bob, age 64, reformed smoker since 3/85, moderate alcohol,
Right tonsil, 5/20/09 tonsillectomy, T2N0M0, IMRT started 6/17/09, ended 8/3/09, 33TX, no chemo, 11/6/09 & 7/21/11 PET/CT Scan clear
Joined: Nov 2006
Posts: 93
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Nov 2006
Posts: 93
Good advice, thank you.

Sorry you had to reschedule tho.

Margaret


caregiver to husband
right tonsil stage 3
35 IMRT TX completed 1/5/2007
PET Scan clear 3/07
biopsy 9/07 clear
1st yr PET scan 12/18/07 clear
Joined: Mar 2008
Posts: 3,082
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2008
Posts: 3,082
bobster

While I got explicit instructions not to chew gum, I am glad you only had to reschedule without a penalty. While you can search the forum as this topic has come up many times, here is a quick do and don't list for your next PetScan

� 24 hours prior to your appointment:

o Refrain from consuming any caffeine, including any decaffeinated products for 24 hours prior to your exam. Note: Decaffeinated products still contain small amounts of caffeine.

� 12 hours prior to your appointment:

o Stay on a low-carbohydrate diet. (See guide on what to eat.)
o Do NOT engage in any strenuous exercise.
o Do NOT chew gum.
o Avoid mints.

� 6 hours prior to your appointment:

o Do NOT eat anything.
o Drink several glasses of water (2-6).
o Take any prescribed medications as usual.
o If you need to eat, please stick to a small protein-only meal.

� Low-Carbohydrate Diet Guide

Foods allowed: Protein
All meats
Hard cheeses
Unsweetened peanut butter
Tofu
Eggs
Oil, margarine, butter
Non-starchy vegetables, such as broccoli and spinach

Foods NOT Allowed: Carbohydrates
Cereal
Pasta
Dry beans
Fruit and fruit juices
Sugar and candy
Starchy vegetables, such as peas, corn and potatoes
Alcohol
Bread
Rice
Gravy
Jams and jellies
Honey
Milk (including non-dairy milk)
Coffee or tea

Good luck and don't worry too much about you PETScan results , as many as 1 in 4 are false positives. (Or in my case, 2 out of 4).
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13
Joined: Jun 2009
Posts: 13
Bobster Offline OP
Member
OP Offline
Member

Joined: Jun 2009
Posts: 13
Thanks Charm, I will pass this along to the RO nurse.
Bobster


Bob, age 64, reformed smoker since 3/85, moderate alcohol,
Right tonsil, 5/20/09 tonsillectomy, T2N0M0, IMRT started 6/17/09, ended 8/3/09, 33TX, no chemo, 11/6/09 & 7/21/11 PET/CT Scan clear
Joined: Oct 2009
Posts: 51
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Oct 2009
Posts: 51
I just completed a PET on 10/22...my instructions were a little less complicated.

I was told no eating or drinking after midnight the night before, I could have a little water, but that was all.

I really missed my moring coffee, but what are you going to do?

I'm no expert. By the way, my Aunt lives in Fayetteville....

Good luck.
Barry.


57 YO, Dx 10/08 with oral cancer, Surgery 11/08 followed by six weeks of RT treatment with the MASK.
Follow up on 10/15/09 found a soft spot, which turned out to be SCC. Don't know if I can receive more radiation or not since I've already received full dose.
Joined: Jul 2008
Posts: 507
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2008
Posts: 507
My instruction sheet is similar to Charms:

How to Prepare for your PET Exam
� DAY BEFORE YOUR EXAM

1. Patient should eat a low carbohydrate diet.
2. Patient is not to engage in strenuous activity or exercise. If job is not too labor extensive, the patient may go.

� DAY OF TEST

1. No food 6 hours prior to test.
2. No caffeine or nicotine products 5 hours prior to test.
3. No diuretics the day of the test (water pills, lasix). Take all other medications as normal.
4. No gum chewing, no hard candy, and no breath mints the day of the test.
5. Drink 16-24 oz. of water prior to test.
6. Drink plenty of fluid after the test to flush out the system.
7. Wear comfortable clothing. Room temperature is approximately 72 degrees.
� PET/CT sites � NO METAL ON CLOTHING
8. Test takes 45-90 minutes. Total time is 2 hours.

....
It continues with special instructions for diabetics


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11

DonB #106733 11-09-2009 07:46 PM
Joined: Jun 2009
Posts: 13
Bobster Offline OP
Member
OP Offline
Member

Joined: Jun 2009
Posts: 13
Thanks to all,
I had my rescheduled PET/CT scan and the results are negative, that is 'all clear'. Praise God.


Bob, age 64, reformed smoker since 3/85, moderate alcohol,
Right tonsil, 5/20/09 tonsillectomy, T2N0M0, IMRT started 6/17/09, ended 8/3/09, 33TX, no chemo, 11/6/09 & 7/21/11 PET/CT Scan clear
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7

Bob, congrats on the great results!!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
GREAT NEWS Bob!!


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,927
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5