| Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Sep 2009 Posts: 229 | Thanks Jerry, I thought that would be the case but I had to ask.
LOL Steeler fans are all over! My husband was born in New Castle, PA. He's in the Coast Guard and we've been in Sitka for a little over 2 years. What's even funnier, our neighbor is a Steeler fan too! LOL
Patty 08-10-09 Partial Glossectomy w/suprahyoid neck dissection SCC T1NOMX Stage I | 46 years old
| | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | Patty,
Those impressions are not cheap so keep them away from cats. I speak from vast experience!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Sep 2009 Posts: 229 | [quote=boatswife]Hi everyone! I just went back for my 4 week post op appointment and all my pathology reports were negative. What a relief for now. The only problem I'm having right now is my lower teeth rubbing against my tongue. I don't think it's going to go away, but if it doesn't by my next follow up appointment he wants to do a biopsy (to make sure it's granulation tissue) and then laser the area. [/quote]
I figured it would just be easier to update this thread. The spot never went away and looks like a bunch of scar tissue now with granulation tissue? in the middle. We leave Monday for Seattle to have my 2nd follow up appointment and on Wednesday I should be getting that area biopsied and then he'll laser the area also.
I'm being positive that everything will be ok, but I don't think the fear ever goes away. "What if's" really suck! So if you would please keep me in your thoughts and prayers next week, I'd certainly appreciate it.
I hope everyone has a good week.
Patty 08-10-09 Partial Glossectomy w/suprahyoid neck dissection SCC T1NOMX Stage I | 46 years old
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | I will be praying for you. yes, the What if's really do suck. I am still waiting for the fear to go away after 5 months, and it is still there. Both of us will be getting asnwers next week. Good luck.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: May 2009 Posts: 114 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2009 Posts: 114 | I'm new but says Hi. Greatr folks here.
Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
| | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | I don't think the fear ever goes away. After 4 and a half years, I still worry when something looks or feels funny.
Patty, you will be in my thoughts this week.
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Sep 2009 Posts: 229 | Update: Negative biopsy on frozen section and I did fine with him using the laser to clean up that granulation tissue. The spot on tongue is a little raw, but doing fine.
Thanks for thinking of me~
Patty 08-10-09 Partial Glossectomy w/suprahyoid neck dissection SCC T1NOMX Stage I | 46 years old
| | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 5,260 | I have all of you in my prayers and if anyone of us didn't worry, we have no value on our life. God gave this life to us and when he dsays enough, it's bye bye world and hello heaven. Life is one thing we can't control, but can make it smoother or the road bumpier.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April. --- Passed away 5/14/14, will be greatly missed by everyone here
| | | | Joined: Sep 2009 Posts: 229 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Sep 2009 Posts: 229 | Thanks Jim and a bunch of hugs headed your way~
Patty 08-10-09 Partial Glossectomy w/suprahyoid neck dissection SCC T1NOMX Stage I | 46 years old
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | So glad to read that your biopsy was negative. I pray you continue to have cancer free appointments.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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