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| | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi 2 dogs:) Welcome to OCF. The support you will find here will be wonderful, I promise!!
My experience with the PET was there are a lot of false positives. My first doc wanted PET's every 3 months. Then I switched doctors and she doesn't do them at all, doesn't believe in them. So, try not to worry about the "light up"
I didn't have chemo or radiation but I have learned a lot from the people here and I'm sure more will chime in. I know it can be a long process for some. So, take your time, enjoy your small victories and you will be just fine.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Sep 2009 Posts: 6 Member | | OP Member
Joined: Sep 2009 Posts: 6 | Thanks Suzanne, I see the ent surgeon Tuesday about the tonsil lighting up, he said "no big deal", and that he has seen a lot of false positives with tonsils because any inflammation caused by infection will show up, and the tonsils are the most likely to do that with an infection in that area. I'll keep hanging in there! Thanks again for your note! | | |
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