| | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | I think a flower fund would be nice but it is totally unsustainable. Rosie couldn't even get a few people to donate $10 to OCF so we could win a prize.
If you are wondering what to do with the left over money and you don't want to donate it OCF, we have another member who had surgery 8/31 who expects to be in the hospital for 10 days. Why not send her flowers also.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Who is the other member? AmyK? I'm all for OCF sending flowers but with so many people putting in money with the expectation of it going to Christine I think we should stick with that.
I wonder if we could set up a general fund that would go to OCF and someone could be in charge of the flowers? That may too much. I think we made the decision to do this because we all know and love ChristineB. She is the first to welcome new members and provides support to everyone here. She is special and that is why we are doing something special for her. Just my thought....
Last edited by suzanne98; 08-31-2009 04:48 PM.
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jan 2008 Posts: 706 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2008 Posts: 706 | I agree with you Suzanne. I don't know why this has to be such a big deal. Flowers for Christine is how this started and how it should end.
cg to husband, 48 Stage 1V head and neck SCC. First surgery 9/07. Radiation and several rounds of chemo followed. Mets to chest and lungs. "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Went home to God on February 22, 2009.
| | | | | Joined: Jan 2009 Posts: 253 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jan 2009 Posts: 253 |
I orginally voted to maintain a flower fund, but after giving it some thought, I believe it's a good idea.
Since more than enough money has been collected for flowers, maybe we can spend the remained on something she may need after she is home. Then close the fund.
Sandy
Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
OCF member/supporter
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | There's never too much money for a bouquet...there's just bigger bouquets! :-)
We can't collect money from multiple people with a specific intent and then change how the money will be spent AFTER the money is collected.
If anyone wants to contact Cecilia for the list of donors to gain 100% agreement on the use of the funds, feel free to do so. Otherwise, it would just be wrong to do anything other than send Christine flowers...because that's why people donated the money that is currently in the fund.
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Dec 2008 Posts: 126 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Dec 2008 Posts: 126 | Hi,
I just wanted to chime in and say how much I miss Christine's presence on the forum. I've gotten in the habit of always checking for her posts and responses to people. She has been such a staunch supporter and we could always count on her to answer even the most redundant questions. Just my 2cents and I hope and pray she'll be back with us soon....Geri
Geri-CG to husband Richard, 62 yrs old. Former smoker, quit 30yrs ago, light drinker. Dx after tests with BOT T1N1M0. Tx to start by end of Dec. Seven wks IMRT with 2x Cisplatin-2x Erbitux. Peg in 12/08- removed 4/21/09. Looking good so far. Clear Pet &MRI 8/2/09
| | | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | | "OCF Down Under" Platinum Member (300+ posts)
Joined: Mar 2008 Posts: 404 Likes: 2 |
So do I Geri, and I hope that Christine's cheek flap is turning a beautiful shade of pink, albeit with some help from some leeches, and everything gets better and brighter and she is on the road to recovery as soon as possible.
Karen
46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | I agree, the forum is not the same without her.
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | I agree with Margaret...you really can't have an arrangement that is too big!! Especially for our girl:) Wow....I miss her. I can't wait to hear how she is doing. I don't want to bother Travis but I'm dying to call him....
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: May 2005 Posts: 31 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2005 Posts: 31 | Just a thought. A bouquet for her in the hospital as soon as she can have flowers and a bouquet sent to her home for her homecoming. Two chances to enjoy flowers. Or maybe a third one sent to her home a couple of weeks after her homecoming.
Husband diagnosed 2/9/05 SCC Larynx (piriform sinus)Stage IV,T4,N1,MO
cisplatin/5FU 3/21-3/25 & 4/11-4/15, began 39 rad 4/21/05 last rad 6/17/05, mrnd 10/7/05
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