#10268 04-24-2007 03:43 PM | Joined: Mar 2004 Posts: 98 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Mar 2004 Posts: 98 | Hope this is ok to post.
http://www.suntimes.com/news/metro/355049,cst-nws-ebert24.article
Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
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#10269 04-24-2007 04:16 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Thank You for sharing Karen. So sorry to hear about your mom. It's nice of you to want to help others. This film critic reaches a lot of people. Maybe Brian Hill or Davidcpa could get him to help spread the word. He definitely reaches a lot of people. And he knows a lot of "movers and shakers". It is a good survivor story, and he has a sense of humor. Davidcpa, here is the first step to that "talk show guest" you were hoping for. And I'll quote you."Yeah, Brian, I know....Good Luck. 
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#10270 04-25-2007 08:41 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Petey,
I don't think we, he & I, have to much in common re DX & TX. Find me a celebrity like me and I'll be all over them.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#10271 04-25-2007 12:19 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | While his oral cancer is different than some of ours, he has a voice that is out there and can bring attention to the disease and the situation of late diagnosis, which needs all the spokespeople it can get. I think that he deserves a few letters from as many of us as possible speaking of OCF and public awareness. His voice is stronger than any of ours.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#10272 04-25-2007 03:50 PM | Joined: Mar 2007 Posts: 7 Member | | Member
Joined: Mar 2007 Posts: 7 | Being a Chicagoan the Roger Ebert story was a big news item here today.
I was just going to post the link to the story when I saw that Karenmm had alerady done so. Thanks, Karen, and my sympathy to you and your family.
I sent an e-mail to Mr. Ebert through the Chicago Sun Times link above, commending him on his decision to bravely face the public today. I also praised this forum and the OCF. I encourage everyone to do the same.
Sue
All I can say is, Roger, you get "two thumbs up!"
Sister-in-law of 39 yr. old DX 2/07 STAGE IV BUCCAL MUCOSA(CHEEK)-invasive, moderately differentiated, IMRT x37 start 3/29/07, cisplatin x3 start 4/2/07.
As Bon Jovi's lyrics say..."Take my hand, we'll make it I swear, livin' on a prayer"
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#10273 04-25-2007 05:27 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 794 | Brian, I agree about writing to Roger Ebert. Do you have any idea how we might do that?
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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#10274 04-25-2007 06:27 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | I agree that through his newspaper is the best way to contact him. I don't know of any other means. I'm sure that he gets plenty of mail/emails there.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#10275 04-26-2007 03:34 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | For anyone who has the time to write. You Must follow (read) the rules. No attatchments. Robert Eberts editor is Jim Emerson. It may be a little tricky to get to him in a "one on one" E-mail. Good Luck! You have been sent this message from Peter Billias as a courtesy of rogerebert.com. Contact Us To view the contents on rogerebert.com, go to: http://rogerebert.suntimes.com/apps/pbcs.dll/article?AID=999941117002 Regards, Peter Billias
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#10276 04-26-2007 08:10 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Ebert direct email is below. Please be polite, supportive of his situation and choices, and articulate how much this disease needs a highly visible spokesperson like him. That OCF is out here, and it will help him channel his strengths to do positive in his realm of influence if he would work with us.
Roger Ebert
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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