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EzJim #102600 08-29-2009 06:24 AM
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mhupe Offline OP
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Hi Cecilia,

There are more funds to come, some people indicated they would prefer to provide checks. I'll enter into paypal as I receive them. We have to wait for Travis' ok from the docs on when we can send. It's nice that the money is already collected. If we get enough, perhaps we could send two bouquest over the course of her long recovery. :-)


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
mhupe #102625 08-29-2009 05:28 PM
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Hey guys...

Considering the flower arrangement...what would you guys think about taking any excess and making a donation to OCF in Christine's honor. Flowers are wonderful but fleeting and the donation would have more stay power. Just something to consider.

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill
debandbill #102628 08-29-2009 06:26 PM
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mhupe Offline OP
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Hi Deb,

So far, everyone who has contributed to the paypal account has done so with the expectation of sending flowers.

To keep things uncomplicated, I think we should keep the flower fund a flower fund.

However, I like the idea of supporting OCF. It is super easy to make a donation to OCF, I made mine the same day I sent money to Christine's fund. There's a comment section that can be filled out if anyone would like to dedicate their contribution to Christine.

And, unlike the flower fund, everyone can do this individually and we don't have to pre-pool the money.

Margaret



Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
mhupe #102632 08-29-2009 07:39 PM
Joined: Aug 2009
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Hey guys, I went to see my mom today and it looks like she will be asleep for a bit longer. They put her back on sedditives to keep her from moving around. Yesterday and all last night the doctors were trying to get more blood flow in her neck by using leeches but those seemed to have little effect. She recieved two bags of blood today because her blood pressure was low. The doctor also said the flap of new skin in her cheek has changed colors slightly so they are keeping an eye on it. Thank you guys for your prayers I know they are keeping my mom strong, and thank you for the donations toward the flowers i cant wait till shes awake and can recieve them smile


Travis
son and caregiver for ChristineB
TravisB #102633 08-29-2009 08:22 PM
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Travis,

Thank you for the update. (I had no idea that leeches were still being used. Yikes!!)

I'll keep up my prayers for your Mom.

- Margaret
(the other Margaret!)


Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
TravisB #102634 08-29-2009 08:25 PM
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Posts: 718
mhupe Offline OP
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Travis,

Thanks for taking the time to provide the update. Was hoping for better news. Will keep on praying. Your mom's a strong lady, and she's got people worldwide who have her in their thoughts and prayers.

I hope you are doing ok, Travis. It's always important for the caregiver to take good care of themselves.

Margaret


Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
mhupe #102638 08-29-2009 09:14 PM
Joined: Nov 2005
Posts: 1,128
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Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
Pete D #102641 08-29-2009 11:49 PM
Joined: Feb 2007
Posts: 1,940
"OCF across the pond"
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I'm disappointed in this news,but think a trip to the island might cheer me up.

Come on Christine you can do it girl!!!!!


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
Cookey #102644 08-30-2009 06:48 AM
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I have not been on here much in the last week. I will continue to keep Christine in my prayers and you too Travis. I know this is hard on you as well.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
walknlite #102647 08-30-2009 07:01 AM
Joined: Apr 2005
Posts: 2,219
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Travis, thanks for the update. I was hoping to drive up and visit you guys by the end of the week. I guess I will postpone till the following week or until ou say it's OK.

When when your mom is able to have visitors, I would appreciate getting directions from you. I will send you an email at that time.

Jerry



Jerry

Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.

"Whatever doesn't kill me, makes me stronger"
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