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| Joined: Aug 2009 Posts: 3 Member | OP Member Joined: Aug 2009 Posts: 3 | Thank you so much for the warm welcome, and I appreciate the thanks for my service. Yes, I have been warned to eat a lot and I am sure trying (not the most positive of reasons to pig out, but hey!) Thanks for the info on the hearing loss ref. the Cisplatin. I had read that with some of the research I have done, along with the importance of hydration and the other advice.
We visited the chemo clinic Friday and sat down with one of the docs and the nurses. They gave us a real good feel for the procedure, side effects, etc. and they are all great so far. One of the things that I have had a tough time understanding until recently is why I need to do this treatment if there is no visible cancer left in my body (which all the docs stated there isn't). I had a hard time accepting that there could still be unseen cancer in me and this is the best way to try and fight it. I am still a little nervous because they have told us this is about the toughest treatment they do to fight cancer... so I know I ain't gonna be a walk in the park. But again, we have faith and I will get through it. Thanks for your advice and I will keep you posted.
40 y/o non-smoker, social drinker, diagnosed w/ Stage 2 SCC on R. side of tongue 6/09. Tumor and 16 lymph nodes from R. side of neck removed 7/8/09. Port and Peg tube 8/25/09. Tx: 6 wks. of IMRT and 3 rounds chemo (cisplatin).
| | | | Joined: Mar 2008 Posts: 404 Likes: 2 "OCF Down Under" Platinum Member (300+ posts) | "OCF Down Under" Platinum Member (300+ posts) Joined: Mar 2008 Posts: 404 Likes: 2 | Sean
Sorry that you are having to deal with this. The radiotherapy and chemotherapy treatments are used to clean up any bits of the disease that may still be in our body following the surgery. The chemotherapy will go through your system and the radiotherapy is a more targeted treatment probably around your mouth and neck area, where the tumor and lymph nodes were removed from. It can be very overwhelming.
Best wishes with your treatments. I have visited Hawaii many times, you come from a beautiful part of the world.
Karen
Last edited by Karen Rose; 08-23-2009 01:12 AM.
46 yrs: Apr 07-SCC 80% entire tongue removed,T4N1M0 Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs 30 x rad,6 x Cisplatin, 30 x HBO Apr'08- flap Recon + ORN Mandibulectomy (hip bone to reconstruct jaw) Oct'08 1 Plate out-jaw Mar'09 Debulk flap Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Sean, First thank you for serving our country. Secondly, you have come to the right place. I do not have a lot go advice for you as I did not have to go through chemo or radiation. Who knows, I may have to later on down the line. There are a lot on here that have been through that and I know that I learn things from their experiences. Good luck with everything.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
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