Christine is my hero too. For sure she is a one of a kind lady that knows how to fight. Christine doesn't talk about herself much, but likes to boost others into being positive.

Hi and welcome Jeanna,
As you have discovered this is the best place to find information and support for OC.
I myself am a nearly 3 year survivor but from what you have described you and WendyG are travelling a very similar and difficult path at the moment.
The Lyn that Jim has mentioned is also in Melbourne and posts here under the name LynfromOz as well as Karen Rose and Sue G.
Wendy and I are both from NSW as are some friends who post under the name of Tizz and Aussieh.
There are also a few others who post from time to time.
Even though there are a few of us from Downunder the disease is international and even though we are all from different countries we all consider ourselves to be part of a family.
Some of us including Liz, Christine and Jim are also friends on facebook where you can see a little more about us and what we look like.
http://www.facebook.com/oralcancerfoundation .
Am at work writing this and just wanted to say hello for now and as Christine wrote we want to let you know that you are not alone.
Welcome {{{{{hug}}}}}Gabriele

Hi and Welcome Jeanna. I am glad you found this site. There are a lot of wonderful people on here. This is my "family." As the people here know what we go through and the emotions that can hit us when we least expect it. Keep us updated on Ron's progress.

Thank you all so much for the support you have already shown me & my other. I like it that you all still manage to have a laugh - that is really important. I had to laugh at the person who woke from some sort of surgery & started hallucinating...Rod did the same after his peg was inserted, can't quite remember but something about a wheelbarrow on the ceiling...he told me he had everyone in recovery laughing but was a bit embarrased when he found out what he was like. I went to my chiro this morning & was telling him about this site. I said I felt so much better mentally after coming across this support.

Rod had 4 weetbix this morning for breakfast, I said if he ate it all he only had to have 1 x formular via the peg. He did good. He said he will try & eat something else at lunchtime, I would assume it's very hard for anyone with no teeth. Eating anything is a good thing. His next follow up is on Tuesday next week. I'll be decreasing the MS Contin again tomorrow.

Question - I would have expected the small lymph node to go by now but it hasn't. The large one has decreased in height more than size - is that normal for 3 weeks post Tx?

that's great news Jeanna that Rod had weetbix. Every little bit counts. Steve had 1 today plus 4 glasses of icecream so I'm happy with that. Plus he's on 5 cans of 2cal via his peg and his weight is slowly climbing back up. I'll be interested to see what answers you get to your question. Steve also has 2 tumours still showing and we are nearly at the end of treatment. I'm concerned as well but figure treatment continues to work for a bit after it ends so I'm hopeful they will continue to shrink. I will be thinking about you and Rod and wishing you all the luck in the world.

About no tetth. LOL If it can't be gummed to death, trash it. I have been trying to eat for 20 months without chompers. It just doesn't work so great. It's a lot like a Bear trying to not empty out in the woods. LOL hard to do.

LOL Jim, but all he wants for Xmas is a full set of teeth & an eye fillet steak!! Are you going to eventually invest in some chompers yourself? I've heard a lot from my mum about people gumming to death & being fine with it. Rod hates it, think he wishes now he'd looked after his before gtting them all out!!

Thanks for your ET's email add, once I get used to this site, I'll write to her.

J

LOL Jim, but all he wants for Xmas is a full set of teeth & an eye fillet steak!! Are you going to eventually invest in some chompers yourself? I've heard a lot from my mum about people gumming to death & being fine with it. Rod hates it, think he wishes now he'd looked after his before gtting them all out!!

Thanks for your ET's email add, once I get used to this site, I'll write to her.

J

Oops...well, just in case you wanted to read that twice!! Note; if I don't laugh once a day, I'll cry inside all day.....you guys rock.....