| | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | I am day 3 of radiation and had my first of 6 doses of cisplatin on tuesday. After my first rad on Monday night I started feeling nausea, tuesday was worse and I threw up 4 times, this morning threw up, haven;t since but then again I'm scared to eat now! Doesn't matter if I eat orally or through my PEG, it all comes out. Any suggestions? I think its a bit early for side effects, don't you think?
I'm taking my antinausea meds but they don't help if they keep getting puked out.
I'm on day 2 of IV fluids due to the dehydration.
I'm really not looking forward to the rest of the treamtnet if its gonna be like this!!! I thought the first 2 weeks were suppose to be a breeze!LOL
I sure hope the rest of the week goes better!
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
| | | | | Joined: Jun 2007 Posts: 718 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 718 | Sorry you are having such a rough time!! Glad you are getting some hydration...as an oncology nurse, I'm sure you are better educated than most of us were in keeping up with hydration.
How recent was your carbo/taxol treatments? Do you think that might be contributing to why you feel so lousy at the moment?
I hope that you will get some relief soon! Am hoping others here will have some helpful advice for you!
Margaret
----------
C/G: Husband, 48 (at time of dx)
Dx 5/18/07 SCC, BOT, lymph node involvement. T1N2BM0. (Stage 4a, G2/3)
Tx 6/18 - 8/3/07, IMRT x 33 Cisplatin x3 (stopped after 1st dose due to hearing issues). Weekly Erbitux started 6/27/07 completed 8/6/07.
| | | | | Joined: May 2009 Posts: 132 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2009 Posts: 132 | Sorry to hear it's been a bumpy ride already for you. I wonder if it's the Cisplatin that is causing the nausea and vomiting? Are they giving you anything for nausea along with the Cisplatin so that you are getting it i.v. instead of having to take it orally?
I hope things improve! Hang in there --
Chrissy
Stage 2 SCC upper right palate
Hemi-palatectomy and maxillectomy 5/28/09
Six teeth gone
IMRT x30 starts July 13. Completed 8/26/09
Carboplatin and Taxol x6 starting 7/14/09. Completed 8/25/09.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have nothing I can say about how not to get sick or worry. Is it possible that worry is causu=ing this problem? Maybe if they gave you something to relax you this would prevent the sickness?? Anything would be worth asking about.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Perhaps you are just emotionally torn up inside over this whole thing? Maybe a mild sedative might be worth discussing with your docs.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Mar 2009 Posts: 109 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Mar 2009 Posts: 109 | Have you discussed it with your oncologist? I'm sure they give you a fistful of anti-nausea drugs for your chemo, but maybe you need something different?
I'm sorry it's gotten so tough so early in the process.
38 yo@dx, female, non-smoker, non-drinker, SCC right lateral tongue. T2N2aMx stage IVa; 1/20/09 bilateral neck dissection, hemiglossectomy, micromets in 2 right nodes, left all clear. 33xIMRT + 3 cisplatins. Tx completed 5/08/09. PET scan 7/29/09 clear, 5/26/10 clear, chest x-ray 5/23/11 clear
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Sorry you're having such a tough time with nausea. I can very strongly sympathize as I've been nauseated pretty much constantly since mid-May when I was near the end of RT.
None of the stuff seemed to work for me - including Zofran, Carafate, ginger capsules and god knows what else - until I finally got some Compazine the other day. I also sometimes take a 2.5 mg Marinol capsule generally with the Compazine at bedtime, so it might be a combination effect.
Just a thought, and I hope things improve for you!
Courage.
David 2
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jul 2009 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2009 Posts: 38 | I'll chime in what others are saying: I would suspect the Cisplatin over only 3 rad TX. Get with your Oncologist ASAP regarding nausea and vomiting. That's their job to help you manage this.
Mark
BOT Squamous cell, stage IIIa
| | | | | Joined: Jul 2009 Posts: 31 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2009 Posts: 31 | I can only speak for myself but with me it was the depression that caused lack of sleep which made me think I was having side effects which had not yet started. I'm into week three of cisplatin and Rads with very minor side effects after Doc put me on anti -anxiety meds.
Rick
Age 50 at DX July 13 2009. T1N2BMO, stage III BOT-2 nodes right side, HPV negative, drinker-smoker, cisplatin x 3 IMRT x 39 70 GY, pegged and ported. Started treatment on 8-3 2009. Selective neck disection 11/30/2009, 9 nodes removed-neg pathology
| | | | | Joined: Jun 2009 Posts: 440 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2009 Posts: 440 | Got through my first week, nausea and vomiting throughout! Over the weekend, I did not use my PEG tube and just ate by mouth (which was very little). I was put on new nausea med (phenergan) and I was good the whole weekend.
Monday I got my PEG tube checked for placement as they thought it might be the culprit, I already had to have it redone because it was in the wrong spot. The exam confirmed it was in the right spot so that night I had my tube feeding and woke up puking it all back out.
So now I wonder if its the type of feeding that is not agreeing with me. I'm going to try just one can at a time and slower rate first, I meet with my nutritionist on friday if that doesn't seem to work.
I didn't think it was anxiety but now I think I am anxious about whether or not my tube feedings will come back up!LOL I just wanted an answer to it since I knew it was too early for side effects from rad or chemo but my body seems to always amaze me on how wrong it operates at times!LOL
Thanks for all the responses.
Dx 3/27/09 @ 28 years old with High Grade MEC T4N2M0
Elizabeth, 33, mother of 3 girls (4,7, &8yrs old)
3 rds of chemo(Carbo/Taxol)
Rt Mandibulectomy, rt fibular flap,& rt ND with trach, picc,& g-tube.
30 rds of rads with weekly cisplatin
SCANS ALL CLEAR!
OCF Regional Coordinator of San Antonio Walk
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