| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Sharon, welcome to OCF. This is the best place to be for information and support. Please feel free to ask questions. Your brother is very lucky to have you to be his caregiver. Best wishes with the upcoming procedure.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Sharon, there is one thing that most of us do and that is get as mean as a mother bear with our caregivers, get out the nasty word repellant and put it on your back so the words slide right offYou knoe he won't mean them and won't remember saying anything or beig mean probably. It's part of this disease.He will need you more after treatments then before.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: May 2009 Posts: 114 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2009 Posts: 114 | Hi Sharon and welcome. I am new here as well. SCC surgery on 23rd July. Learning and praying for the best for everyone here.
Age 52, T2 N0 M0 SCC of left anterior floor of mouth. Esophagoscopy, Direct laryngoscopy, Resection of left anterior FOM lesion w/ lateral tongue. left selective neck dissection levels I-IV. 5x6cm skin graft coverng excision. Finished 33-35 rad Tx. False recurrence 12-22-10 last surgery 2-15-10
| | | | | Joined: Aug 2009 Posts: 6 Member | | Member
Joined: Aug 2009 Posts: 6 | Hi Sharon,
I just wanted to check in with and see how your brothers surgery went? Hang in there and be strong!
Kerri M, 41
6/12/09 Tongue Cancer SCC stage 2
7/2/09 Partial Glossectomy clear margins
modified radical neck dissection
39 lymph nodes removed- all clear
7/31/12 Tongue Cancer Stage 1 (unrelated to first diagnosis)
8/6/12 Partial Glossectomy clear margins
| | | | | Joined: Aug 2009 Posts: 90 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2009 Posts: 90 | Hi sSharon, welcome. I'm a new member and caregiver too, How is your brother doing? Please keep us posted . My husband was nasty after surgery last fall and wrote nasty notes since he couldn't talk. I saved the notes and we had a good laugh about them a few weeks ago, now that he's finished treatment.
caregiver to spouse, 55 yrs, dx 9/09 SCC BOT, T2N0,nonsmoker, nondrinker, HPV 16+ ,Lt hemiglossectomy, lt modified radical neck dissection, lt tonsillectomy,PEG 11/08 removed 2/09, 30IMRT, CT neg 4/09, neg CT 10/09
| | | | | Joined: Jul 2009 Posts: 10 Member | | OP Member
Joined: Jul 2009 Posts: 10 | Hi Kerri...thanks for your concern. I really appreciate it.
It was a long surgery! We took him to the hospital at 6a.m. and surgery was complete a little before midnight! Things went well doctors said. I saw him this morning. I really didn't know what to expect but he looked himself with some swelling and staples around his neck, and hooked up to all the machines in the ICU. We'll take things step by step of course but there's some relief having the surgery behind us.
Sharon - Caregiver of brother age 49 Stage IV
DX June 2009 with oral cavity carcinoma-scc
Correct DX is t3n2cmx
Surgery scheduled for 8/4/2009
| | | | | Joined: Jul 2009 Posts: 10 Member | | OP Member
Joined: Jul 2009 Posts: 10 | Welcome Nancy and thanks for asking...
It was a long surgery! We took him to the hospital at 6a.m. and surgery was complete a little before midnight! Things went well doctors said. I saw him this morning. I really didn't know what to expect but he looked himself with some swelling and staples around his neck, and hooked up to all the machines in the ICU. We'll take things step by step of course but there's some relief having the surgery behind us.
I'm glad you and your husband are doing better and can enjoy some laughs!
Sharon - Caregiver of brother age 49 Stage IV
DX June 2009 with oral cavity carcinoma-scc
Correct DX is t3n2cmx
Surgery scheduled for 8/4/2009
| | | | | Joined: Jul 2009 Posts: 10 Member | | OP Member
Joined: Jul 2009 Posts: 10 | Welcome to you....how have you been since having a recent surgery?
Sharon - Caregiver of brother age 49 Stage IV
DX June 2009 with oral cavity carcinoma-scc
Correct DX is t3n2cmx
Surgery scheduled for 8/4/2009
| | | | | Joined: Jul 2009 Posts: 10 Member | | OP Member
Joined: Jul 2009 Posts: 10 | Hi Christine...I'm not sure if I responded before so I just thought I would now to be sure. I'm glad I've found this website especially to meet people like you.
I know I will have lots of questions as we approach the days ahead. Blessings to you.
Sharon - Caregiver of brother age 49 Stage IV
DX June 2009 with oral cavity carcinoma-scc
Correct DX is t3n2cmx
Surgery scheduled for 8/4/2009
| | | | | Joined: Jul 2009 Posts: 10 Member | | OP Member
Joined: Jul 2009 Posts: 10 | Thanks so much for the heads up. Blessings to you.
Sharon - Caregiver of brother age 49 Stage IV
DX June 2009 with oral cavity carcinoma-scc
Correct DX is t3n2cmx
Surgery scheduled for 8/4/2009
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