| | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | My 25 year old son has had a bump on the back of his tongue and a sore throat for about 4 weeks.
He went to his GP and received 1 round of antibiotics. It did not clear up he was having a lot of pain. The GP then referred him to an Oral surgeon.
That visit took place today. The Oral Surgeon stated that the look and thickening of the tongue tissue is constistent with a fungal infection. Or thrush. He said whatever it is, it appears to be on it's way out. He gave him a rinse to use and if not better in 2 weeks then they will do a biopsy. My son confirms it has gotten much better.
I guess I'm a little hyper-sensitive due to his father's bout with BOT cancer.
In addition, our son lives in Orlando and we are in Ohio. I'm a little uneasy and know I'll be re-diving into the research again and staying up all night stewing about it.
Ginny (MikeG spouse)
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Whenever I had thrush (twice) my entire tongue was coated and it was very painful. In fact the last time I had it my tongue actually split down the middle. The only medicine I have been given was Diflucan and it clear it up quickly.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thrush can be very painful to have. Ive had several bouts of it. With meds it will clear up quickly.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Thank you for your input David and Christine. My son felt relieved hearing of your responses and how similar your experience is with his. It reinforced what the oral surgeon had discussed with him as well. He hit the jackpot with that Oral surgeon. Turns out he works primarily with head and neck cancers at M.D.Anderson in Houston. He had just recently flew in to Orlando to assist with this "satellite" location. I was proud when my son related to me how the surgeon and staff began explaining to him the CCC approach and requested permission for his case to be reviewed by the "team" at the regular meetings. He jumped right at it with excitement "knowing all about it". His experience with his Dad and our research on OCF back then made for a good initial patient/doctor consultation. They discussed the likely fungal infection, and addressed my son's concerns with Leukoplakia, genetics, and HPV connection. The doctor continued with talk on molecular suppressers, triggers, HPV research, smoking and all that cool stuff Brian Hill explains so well. My son said it felt good to have rudimentary knowledge of the subjects, the research and the terminology. The doctor spoke at length with him, and then gave him a good lecture on not smoking being defined as not smoking, Ever. Period. Thank you OCF.
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Tell him to get a soft tooth brush and biotene tooth paste and brush that tongue 2 times a day. That and anti biotics help a lot .
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Oct 2006 Posts: 209 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Oct 2006 Posts: 209 | Update on son, he went to his follow-up appointment with the oral surgeon yesterday.
The medicine did not clear this up.
They scheduled a biopsy and removal of the existing lump on his tongue for Sept 11.
He will be under general anesthesia.
My husband will fly down to be with him.
Yikes!
Ginny
Ginny, spouse of MikeG. SSC BOT T2N1M0 Stage III, Dx 06/27/06 at age 52, Tx 07/31/06 through 09/28/06 Chemo Cisplatin & 5FU x2, Radiation x42. Cancer free and doing well.
| | | | | Joined: Dec 2008 Posts: 1,004 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Dec 2008 Posts: 1,004 | Hi Ginny...hang in there. I know how scary the word biopsy is. Just remember if it is something, it's better to know early. Please let us know. I will watch this thread to hear how everything goes. I will be praying for you and your family.
xoxo
Suzanne
***********
T1 SCC on right side of tongue
Age 31...27 when diagnosed
4 partial glossectomies
No chemo or radiation
Biopsy on 2/2/10-Clear
Surgery needed again...no later than April 2011
Loving life and just became a mother on 11/25/10
It's not what we CAN'T do..it's what we CAN do:)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | To me Biopsy means I will know negatives or positives and that's what I want. Biopsys are great to have done to be sure one eway or the other.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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