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Joined: Jul 2009
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tomy Offline OP
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am tryin to find how much time one can have left wen he decovers he has cancer. early stage is wat they saying but it will take them 3 months to start doin anything. is that too long

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Yes,

but try and provide us more details. See everyone's signature line as an example.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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3 months sounds a bit long to me. From the time of my initial diagnosis to actual start of treatments was 6 weeks, and they said that was a long time



18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.


�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking
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tomy Offline OP
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the 3 months is for them to get the insurance to approve the things that need to be done but im not sure if i can do anything to speed up the process. is there a place to hlep ppl first then do the insurance stuff in the meanwhile

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I never heard of one. My insurance didn't pay for Ohio State LOL But I am , They paid the other 3 hospitals no problem. and no delays. I think the time between diagnosis and 1st Surgery at OSU CCC was maybe 3 weeks and that after the other 3 Hospitals


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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Tomy,

It doesn't take 3 months to get ins approval. You need to be the squeaky wheel.

Where are you being Tx'ed?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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tomy Offline OP
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im in la,ca and im with blue cross called them they said the doctor is the one that has to put the urgent request. gonne try to take care of it next week. meanwhile the tumor is 3cm in lengh and 1cm wide its just keep on gettin worser.

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Tomy: I'm with Blue Cross CareFirst, and was able to start getting treatment almost immediately. Had to have certain things done first such as seeing a dentist, PetScann, etc. It may have been 3-4 weeks before I got started. However, my doctors took care of all the insurance filings.

Sandy


Sandy 56, BOT SCC Biopsy 1/21/09 Stage 3, T3NXM0.
Finished 3 cycle induction chemotherapy 4/7/09. (Chisplatin, 5-fu and Texotere). Re-staged 4/20/09,(very successful.) Will start Carboplatin/radiation 2 Gy/5 days/7 weeks (Tomotherapy) starting May 4th. Finished 6/22/09.
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tomy Offline OP
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thx vary much for the tips and info

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Unfortunately during this time of duress you have to deal with the red tape of the insurance companies. I totally agree with David though(very common) that you have to be the squeaky wheel and push the issue. This is your life, your health and if you have nobody else to be your advocate then it comes down to you.

Be Well, Good luck


Young Frack, SCC T4N2M0, Cisplatin,35+ rads,ND, RT Mandiblectomy w fibular free flap, facial paralysis, "He who has a "why" to live can bear with almost any "how"." -Nietzche "WARNING" PG-13 due to Sarcasm & WAY too much attitude, interact at your own risk.
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