Gordon,

As far as the weird taste goes, if you also have any white fuzzy patches in your mouth, you might have thrush or candida.

As far as the PEG tube settling down, they usually do, but some people have a little more trouble with them than others. My daughter has had a lot of trouble, but she still was glad she got it. Actually, it is vital to her life, because she can't open her mouth wide enough to eat or drink anything. Just be sure to keep it clean and report anything suspicious to your doctor. She has had tissue granulation around hers about 4 times now, but the docs use silver nitrate on it and it clears up. If the skin around the tube gets "bubbly", let your doctor know. Also turning it to a different position occasionally helped, but ask your doc first if you should.

Rainbows & hugs, wink
Rosie


Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.