 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Bonniey,
If we are quiet on this topic it's because no one has anything to contribute to this topic. In all the years I have been here I haven't seen this topic mentioned so I sat back to see if someone might have had the same experience but apparently not. Please understand that this site devoted to helping ALL that come here and just because your topic didn't get any responses is no reflection on the posters, it's just no one had anything to say that may help you. The vast majority of us are just experienced in either the patient perspective or the Caregiver's perspective not the total medical side of this cancer. Perhaps Brian or Gary might be able to contribute.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| 
