My experience with Tomo is good. I am six month past Tx. I never had much mucositis.

I didn't have an appetite for the first couple of months but my taste was pretty good by the third month.

Dry mouth was moderate starting in Tx and through the first couple months of recovery, but it was never really bad and now it is mild at worse,(I ususally don't notice it, seldom carry a water bottle or do anything special) but I understand it varies with humidity, so it might get worse this summer.

I have some edema around my larynx (Adam's Apple). They are telling me to give it a year and if it is excessive they will remove it.

My eating and taste are fine and have been for quite some time except some things like fruit and melon is not as sweet.

I have recently notice that some of my teeth seem to have become sensitive to cold food (frig temp is cold enough to notice it).

My voice is lower.

I feel just fine - back to normal.

I think whoever programmed the Tomo machine seems to have done a good job smile


Don
TXN2bM0 Stage IVa SCC-Occult Primary
FNA 6/6/08-SCC in node<2cm
PET/CT 6/19/08-SCC in 2nd node<1cm
HiRes CT 6/21/08
Exploratory,Tonsillectomy(benign),Right SND 6/23/08
PEG 7/3/08-11/6/08
35 TomoTherapy 7/16/08-9/04/08 No Chemo
Clear PET/CT 11/15/08, 5/15/09, 5/28/10, 7/8/11