Well...Here's some facts.

I am in GREAT shape all things considering. However, I am also 60 + pounds overweight again. Looks like that ultimate diet plan I was on, the one with chemo & radiation, it (like all other fad diets), doesn't result in permanent weight loss wink

Next, I still have EXTREMELY BAD TINNITIS. 75% of the time I don't think about it nor actively "notice" it. Truth is, it is there 100% of the time and sometimes I can ignore it for 1 second, but ignoring it is like telling someone not to think about a blue elephant.

I have been getting (increasingly over the years), muscle spasms in the surgery/radiation areas. Some light twitches. Occasional cramp. But I am dealing with it.

I had ONE physical therapy appt and am told I am stupid for not continuing it. Stupid? Me.

What else, oh yeah, my thyroid was 100% toast!!! Don't forget boys and girls -- HAVE YOU DR CHECK YOUR THYROID.

Mine was virtually non-existent and we didn't find out for 8 months! I could have saved a fortune in triple-espressos.

Several of you on here told me to have it checked, but I think I kept forgetting, or was just too stubborn. Or stupid?

Update on saliva, food, tastes. Wow! I feel lucky. I have I would guesstimate, about 95% full salivary function. 90%+ food taste and all in all feel good.

What else? I can't open my mouth as much as I used to be able to. (Have somehow managed to cram LOTS of food in though)

I seem to have some short term memory issues, but that could even be diet, lifestyle related (did I mention I am turning 40 this March!!?? UUgh!)

I have pretty heavy duty heartburn but take meds for it. This, could also be related to obesity.

Here's a strange one. For over 7 months now. SEVEN MONTHS, I have had a persistent, Dry cough.

Of course I was out of my head crazy after week one. How do you think I felt after week 9???

Here's the deal. It ONLY ever (and always!) happens just as I am drifting off into twilight sleep, at that precipice where one drifts from consciousness into light sleep...

B-A-M !!!!!!

Cough. Cough!

Jerks me into full awaked-ness-ness in a religiously reliable spasm that Seth has grown particularly displeased about.

In general, it is EVERY single night. I have asked my local Onc about and the ENT specialists at UCSF. Their only answer was to get an X-ray to rule out lung cancer, I guess.

Had that about 3 months ago. Radiologist said ALL NORMAL.

Still worried though (do we ever get over the worry??). One of my employees went to the same radiologist for a sprained knee x-ray 6 weeks ago. Turns out he misread her knee film. It was fractured in 3 places! She missed the window of opportunity to get it treated and now will have a limp the rest of her life. Plus, the likely prospect of having metal pins installed in her knee. Yuk. (is it just me, or does anyone else smell the lawsuit?)

Well..I placed a whitty update on the survivor forum in case anyone is wondering how I could possibly have the nerve to post here and not even acknowledge the fact that I have been neglectful here on the boards.

I think that is about it for my list of complaints.

Overall, I feel good. Would I go through all the treatment again to save my life? YES. Would hate every minute of it. But it is worth it.



Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.