Roxs, Your condition is familiar. There are many ways to re-hydrate and comfort your mouth. Your rad-onc may have a mouth rinse with some lidocaine (sp?) that will quiet your nerves a bit. There are also some over the counter throat sprays that have some of that same ability - the relief is short lived but very welcome. Keep your water bottle near by at all times and hound your doc till s/he finds the right saliva aid for you. It gets worse for a while, then it gets better - lots better. Use your peg tube and keep forcing the calories in - your body needs the fuel. The first few months AFTER treatment were the worst of it for me. It DOES get better. You can do it. Be strong. Fight hard. Keep us informed of your progress. Tom


SCC BOT, mets to neck, T4.
From 3/03: 10wks daily multi-drug chemo,
Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.