Thanks for all the info. This is the most helpful site I've been to. How soon can he expect to have more good days than bad? Of course surgery is scheduled for 4/22, so I supose that will be somewhat of a set back. He getting really discouraged; thinks he is never going to feel good again. Does everyone think that? Our 7 year old grandson was hospitalized this week with a serious infection and that has drained us as well. Thanks for any and all thoughts.