 Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Nelie,
I had a horrible time with the mask when they made it and fit it. No one had explained the process to me and it was terrifying. I didn't like being restrained that way. So, realize that you will be very restrained and the first fitting takes alot longer then a regular treatment. After the first week of so of treatment I adjusted and found ways to deal with my anxiety and by the end of treatment I was like Gary, I could have fallen asleep!
Get a PEG if possible.
I had hyperbaric when I needed a tooth extracted and I had no issues at all.
Hope this helps,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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