 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Tonya,
I am so excited to hear some good news about your brother. I know it has been such a rough road for so long for him. I know you already have a brother but I don't know if he is your big brother so I am going to take a chance here. As tough as it is, do not let anger towards the bumbling fools (medical team) prevent you from being the rational one of the group. You have the knowledge, the intelligence and the wherewithall to steer things in any direction you want. If the won't see him in Houston, there are options here in Dallas, too.
Your brother is so fortunate to have you and you are so fortunate to have your little warrior. May miracles drop in your path and may your blessings continue.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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